Family experience of living with children and adolescents with bladder and bowel dysfunction.

Autor:	Rodrigues NDS; Universidade de Brasília. Brasília, Distrito Federal, Brazil., Martins G; Universidade de Brasília. Brasília, Distrito Federal, Brazil., Silveira AO; Universidade de Brasília. Brasília, Distrito Federal, Brazil.
Jazyk:	English; Portuguese
Zdroj:	Revista brasileira de enfermagem [Rev Bras Enferm] 2020 Oct 05; Vol. 73 (suppl 4), pp. e20190805. Date of Electronic Publication: 2020 Oct 05 (Print Publication: 2020).
DOI:	10.1590/0034-7167-2019-0805
Abstrakt:	Objective: to understand the experience of families of living with children and adolescents with bladder and bowel dysfunction. Methods: a qualitative phenomenological interpretive research carried out through an in-depth open interview with parents of children and adolescents linked to Advanced Practice Nursing clinic in pediatric urology. Results: the following representative categories of the families' experiences emerged: Knowledge and learning: building family knowledge; Living with the children's BBD: symbolic representations; Management and adaptation to the children's BBD: reorganizing family life. Final Considerations: the experience of families related to positive and negative meanings, presence or absence of previous experiences, information gaps, learning process and access to specialized professional follow-up. Follow-up by nurses is important in pediatric urology care for the learning and consolidation of specific knowledge about bladder and bowel dysfunction.
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu