Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward.

Autor: Jesse MT; Transplant Institute, Henry Ford Health System, Detroit, Michigan.; Consultation-Liaison Psychiatry, Behavioral Health, Henry Ford Health System, Detroit, Michigan.; Center for Health Policy & Health Services Research, Henry Ford Health System, Detroit, Michigan.; Psychiatry & Behavioral Neurosciences, Wayne State School of Medicine, Detroit, Michigan., Hansen B; Mayo Clinic Hospital, Phoenix, Arizona., Bruschwein H; Psychiatry and Neurobehavioral Sciences, University of Virginia School of Medicine, Charlottesville, Virginia., Chen G; Memorial Hermann Hospital Transplant Center, Houston, Texas., Nonterah C; Department of Psychology, University of Richmond, Richmond, Virginia.; Department of Psychiatry, Virginia Commonwealth University School of Medicine, Richmond, Virginia., Peipert JD; Northwestern University Feinberg School of Medicine, Chicago, Illinois., Dew MA; Department of Psychiatry, University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania., Thomas C; Banner Transplant Institute, Phoenix, Arizona., Ortega AD; Memorial Transplant Institute, Hollywood, Florida., Balliet W; Department of Psychiatry and Behavioral Sciences, Medical University of South Carolina, Charleston, South Carolina., Ladin K; Departments of Occupational Therapy and Community Health, Tufts University, Medford, Massachusetts., Lerret S; Pediatric Gastroenterology, Hepatology and Nutrition, Medical College of Wisconsin, Milwaukee, Wisconsin., Yaldo A; Michigan Medicine - The University of Michigan, Ann Arbor, Michigan., Coco T; Mayo Clinic, Phoenix, Arizona., Mallea J; Mayo Clinic, Jacksonville, Florida.
Jazyk: angličtina
Zdroj: American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons [Am J Transplant] 2021 Mar; Vol. 21 (3), pp. 950-957. Date of Electronic Publication: 2020 Oct 09.
DOI: 10.1111/ajt.16315
Abstrakt: Lay-caregivers are essential to the continuum of care in adult organ transplantation. However, we have a limited understanding of the experiences, exigencies, and outcomes associated with lay-caregiving for organ transplant patients. While much discussion and debate has focused on caregiver requirements in relation to transplant candidate selection, little focus has been given to understanding the needs of caregivers themselves. In response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was held during October 6-7, 2019. Transplant healthcare professionals, researchers, and lay-caregivers discussed the experiences, educational needs, existing research, and research recommendations to improve the experience of lay-caregivers for adult organ transplant patients. In this report, we summarize the Organ Transplant Caregiver Initiative and meeting findings, providing a preliminary action plan to improve education, research, and advocacy for organ transplant caregivers.
(© 2020 The American Society of Transplantation and the American Society of Transplant Surgeons.)
Databáze: MEDLINE
Externí odkaz: