Quality of Life and Dependence Degree of Chronic Patients in a Chronicity Care Model.

Autor: Molina-Mula J; Department of Nursing and Physiotherapy, University of the Balearic Islands, 07122 Palma, Spain., Miguélez-Chamorro A; Chronicity Care, Sociosanitary Coordination and Rare Diseases in the Regional Health Service of the Balearic Islands, 07003 Palma, Spain., Taltavull-Aparicio JM; Primary Health Care Service in the Majorca Island, Balearic Regional Health Service, 07003 Palma, Spain., Miralles-Xamena J; Technical Office, Primary Care Service, Scientific Committee, J. Briggs Institute, 07003 Palma, Spain., Ortego-Mate MDC; Department of Nursing, University of Cantabria, 39008 Santander, Spain.
Jazyk: angličtina
Zdroj: Healthcare (Basel, Switzerland) [Healthcare (Basel)] 2020 Aug 24; Vol. 8 (3). Date of Electronic Publication: 2020 Aug 24.
DOI: 10.3390/healthcare8030293
Abstrakt: Background: The complex chronic patient is a person with one or several long-term diseases, the clinical management of which are considered difficult and related to cognitive or functional impairment. The chronicity care model deeply affects the quality of life and degree of dependence.
Objectives: The objective of this study was to analyse the perceived quality of life and dependence degree in complex chronic patients within a chronicity care model in the Autonomous Communities of Cantabria and the Balearic Islands (Spain).
Design: This was a multicentred, transversal, descriptive, and observational study on a cohort of 206 chronic patients included in a chronicity care program.
Methods: Patients' sociodemographic variables, integral valuation, nurse follow-up records, nursing outcomes classification (NOC)/nursing interventions classification (NIC), nurse diagnoses, and hospitalization data were analysed. A descriptive analysis of all data was carried out. The bivariate analysis assessed the relation between covariables and the overall scoring in European Quality of Life Scale (EuroQuol-5D), Barthel, Braden, and Chronic Patient eXperience Assessment Instrument (IEXPAC in the Spanish abbreviation). A multivariate linear regression analysis was conducted.
Results: The mean age was 79.4 years (standard deviation (SD) = 9.12; range: 39-94). A percentage of 79.3% of the study population shows functional impairment in one or more activities of daily life. A percentage of 83.3% of patients showed a physical dependence. There is a significant relationship between the gender and kinship degree of the caregiver (χ 2 = 18.2; p = 0.001). An overall mean score of 55.38 points in EuroQuol-5D was obtained, along with a 36.87-point satisfaction with the care given in IEXPAC. The overall score correlated positively and significantly with Barthel, Braden, and IEXPAC. The dependence levels improved slightly in the observed patients, which was a very significant outcome in statistical terms (t = 2.08; p = 0.039). A percentage of 66% (R 2 = 0.66) of the score variability at the Barthel index could be predicted from Braden scale scoring.
Conclusions: Dependence is not only affected by the related pathology, but also by the effect on mobility and daily-life activities, which cause a worse perception of the quality of life. The health-care model based on the case management nurse is having positive effects, especially on dependence and patients with ulcer issues.
Databáze: MEDLINE