Adapting a health behavioral change and psychosocial toolkit to the context of physical disabilities: Lessons learned from disabled women with young children.

Autor: Walker LO; School of Nursing, The University of Texas at Austin, Austin, TX, USA. Electronic address: lwalker@mail.nur.utexas.edu., Becker H; School of Nursing, The University of Texas at Austin, Austin, TX, USA., Andrews EE; Dell Medical School, University of Texas at Austin, Austin, TX, USA; Texas Valley Coastal Bend Health Care System, Veterans Health Administration, Harlingen, TX, USA., Phillips CS; School of Nursing, The University of Texas at Austin, Austin, TX, USA; Dana-Farber Cancer Institute, Boston, MA, USA.
Jazyk: angličtina
Zdroj: Disability and health journal [Disabil Health J] 2021 Jan; Vol. 14 (1), pp. 100977. Date of Electronic Publication: 2020 Jul 24.
DOI: 10.1016/j.dhjo.2020.100977
Abstrakt: Background: Mothers with physical disabilities (MPDs) face the behavioral and psychosocial changes of the motherhood transition with fewer resources, additional barriers, and higher risks than nondisabled mothers. In this study we sought guidance from MPDs on adaptations needed to a health promotion toolkit for behavioral and psychosocial health that was originally developed for nondisabled, primarily low-income, women.
Objective: To identify general themes for adaptations that would increase the suitability of the toolkit for MPDs.
Methods: 11 MPDs were interviewed by videoconferencing in a mixed-methods study about their perspectives on improving relevance of the existing toolkit for this population. The toolkit contained three components: assessment scale, feedback template on assessment results, and a decision aid related to behavior change. Interviews were analyzed using qualitative content analysis.
Results: Nine themes for improving suitability of the toolkit for MPDs were identified. Themes covered: Using non-judgment language; including strengths, not just risks; using exercise items applicable to persons with physical disabilities; being aware that functional ability was the key body image concern; considering motivational stages of behavioral change; providing choice in goal-setting for change; including suggestions for social support; identifying resources for health and adaptive parenting; and making health promotion resources available in alternative platforms (paper, electronic).
Conclusions: The MPDs' feedback revealed ways that our toolkit for behavioral and psychosocial health could be improved to be inclusive of MPDs. The participatory methods utilized here are also recommended in designing new or revising existing materials aimed at enhancing health promotion for people with disabilities.
Competing Interests: Declaration of competing interest Lorraine Walker, Heather Becker, and Carolyn Phillips declare no conflicts of interest. Erin Andrews declares Consultant (2016 to present) on the Parents Empowering Parents: National Research Center for Parents with Disabilities and their Families Grant, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
(Copyright © 2020 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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