End-of-life care for homeless people in shelter-based nursing care settings: A retrospective record study.

Autor: van Dongen SI; Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands., Klop HT; Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Expertise Centre for Palliative Care, Amsterdam UMC, VU University Amsterdam, Amsterdam, The Netherlands., Onwuteaka-Philipsen BD; Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Expertise Centre for Palliative Care, Amsterdam UMC, VU University Amsterdam, Amsterdam, The Netherlands., de Veer AJ; Netherlands Institute for Health Services Research (NIVEL), Utrecht, The Netherlands., Slockers MT; Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands.; CVD Havenzicht, Rotterdam, The Netherlands., van Laere IR; Netherlands Street Doctors Group (NSG), Amsterdam, The Netherlands., van der Heide A; Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands., Rietjens JA; Department of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands.
Jazyk: angličtina
Zdroj: Palliative medicine [Palliat Med] 2020 Dec; Vol. 34 (10), pp. 1374-1384. Date of Electronic Publication: 2020 Jul 30.
DOI: 10.1177/0269216320940559
Abstrakt: Background: Homeless people experience multiple health problems and early mortality. In the Netherlands, they can get shelter-based end-of-life care, but shelters are predominantly focused on temporary accommodation and recovery.
Aim: To examine the characteristics of homeless people who reside at the end-of-life in shelter-based nursing care settings and the challenges in the end-of-life care provided to them.
Design: A retrospective record study using both quantitative and qualitative analysis methods.
Setting/participants: Two Dutch shelter-based nursing care settings. We included 61 homeless patients who died between 2009 and 2016.
Results: Most patients had somatic (98%), psychiatric (84%) and addiction problems (90%). For 75% of the patients, the end of life was recognised and documented; this occurred 0-1253 days before death. For 26%, a palliative care team was consulted in the year before death. In the three months before death, 45% had at least three transitions, mainly to hospitals. Sixty-five percent of the patients died in the shelter, 27% in a hospital and 3% in a hospice. A quarter of all patients were known to have died alone. Documented care difficulties concerned continuity of care, social and environmental safety, patient-professional communication and medical-pharmacological alleviation of suffering.
Conclusions: End-of-life care for homeless persons residing in shelter-based nursing care settings is characterised and challenged by comorbidities, uncertain prognoses, complicated social circumstances and many transitions to other settings. Multilevel end-of-life care improvements, including increased interdisciplinary collaboration, are needed to reduce transitions and suffering of this vulnerable population at the end of life.
Databáze: MEDLINE