Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

Autor:	İncesoy Özdemİr S; Department of Pediatric Oncology, Faculty of Medicine, Ankara Yıldırım Beyazıt University, Ankara, Turkey, Taçyıldız N; Department of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, Turkey, Varan A; Department of Pediatric Oncology, Faculty of Medicine, Hacettepe University, Ankara, Turkey, Kebudi R; Institute of Oncology, İstanbul University, İstanbul, Turkey, Zülfikar OB; Institute of Oncology, İstanbul University, İstanbul, Turkey, Celkan TT; Department of Pediatric Hematology Oncology, Faculty of Medicine, İstanbul University, İstanbul, Turke, Şahin G; Department of Pediatric Oncology, Dr. Sami Ulus Children’s Hospital, Ankara, Turkey, Çorapcıoğlu FV; Department of Pediatric Oncology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey, Keskin Yıldırım Z; Department of Pediatric Oncology, Faculty of Medicine, Atatürk University, Erzurum, Turkey, Pınarlı FG; Department of Pediatric Oncology, Faculty of Medicine, Ankara Yıldırım Beyazıt University, Ankara, Turkey; Department of Pediatric Oncology, Faculty of Medicine, Gazi University, Ankara, Turkey, Olgun HN; Department of Pediatric Oncology, Faculty of Medicine, Dokuz Eylül University, İzmir, Turkey, Sarı N; Department of Pediatric Oncology, Dr. Abdurrahman Yurtaslan Oncology Training and Research Hospital, Ankara, Turkey, Dağdemir A; Department of Pediatric Oncology, Faculty of Medicine, Ondokuz Mayıs University, Samsun, Turkey, Özyörük D; Department of Pediatric Oncology, Ankara Children’s Hematology and Oncology Training and Research Hospital, Ankara, Turkey, Eren T; Department of Pediatric Oncology, Faculty of Medicine, Trakya University, Edirne, Turkey, Çakır FB; Department of Pediatric Hematology Oncology, Faculty of Medicine, Bezmiâlem Vakıf University, İstanbul, Turkey, Adaklı Aksoy B; Department of Pediatric Hematology Oncology, Faculty of Medicine, Medeniyet University, İstanbul, Turkey, Bozkurt C; Department of Pediatric Hematology Oncology, Faculty of Medicine, Istinye University, Bahçelievler Medikal Park Hospital, İstanbul, Turkey, Güler E; Department of Pediatric Oncology, Faculty of Medicine, Akdeniz University, Antalya, Turkey, Özgüven AA; Department of Pediatric Oncology, Faculty of Medicine, Celal Bayar University, Manisa, Turkey, Erbey MF; Department of Pediatric Hematology Oncology, Faculty of Medicine, Koç University, Ankara, Turkey, Berber Hamamci M; Department of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, Turkey, Dinçaslan H; Department of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, Turkey, Ünal E; Department of Pediatric Oncology, Faculty of Medicine, Ankara University, Ankara, Turkey, Kantar M; Department of Pediatric Oncology, Faculty of Medicine, Ege University, İzmir, Turkey
Jazyk:	angličtina
Zdroj:	Turkish journal of medical sciences [Turk J Med Sci] 2020 Dec 17; Vol. 50 (8), pp. 1916-1921. Date of Electronic Publication: 2020 Dec 17.
DOI:	10.3906/sag-1911-193
Abstrakt:	Aim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and Methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors. Competing Interests: The authors have no conflicts of interest or funding to disclose. (This work is licensed under a Creative Commons Attribution 4.0 International License.)
Databáze:	MEDLINE
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