'That thing in his head': Aboriginal and non-Aboriginal Australian caregiver responses to neurodevelopmental disability diagnoses.

Autor:	Hamilton SL; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia.; School of Paediatrics and Child Health, The University of Western Australia, Perth, WA, Australia., Maslen S; Faculty of Business, Government and Law, University of Canberra, Canberra, Australia., Watkins R; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia., Conigrave K; Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia., Freeman J; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia., O'Donnell M; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia.; School of Paediatrics and Child Health, The University of Western Australia, Perth, WA, Australia., Mutch RC; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia.; School of Paediatrics and Child Health, The University of Western Australia, Perth, WA, Australia., Bower C; Telethon Kids Institute, The University of Western Australia, Perth, WA, Australia.; School of Paediatrics and Child Health, The University of Western Australia, Perth, WA, Australia.
Jazyk:	angličtina
Zdroj:	Sociology of health & illness [Sociol Health Illn] 2020 Sep; Vol. 42 (7), pp. 1581-1596. Date of Electronic Publication: 2020 Jun 24.
DOI:	10.1111/1467-9566.13146
Abstrakt:	Little is known about the significance of cultural differences to how caregivers receive a diagnosis of neurodevelopmental disability. As part of a Fetal Alcohol Spectrum Disorder prevalence study among sentenced, detained youth, our qualitative study explored the experiences of diagnostic assessment among detained young people and their caregivers. We present findings from the perspectives of caregivers. In conversation with the sociology of diagnosis literature, we present vignettes of three Aboriginal and two non-Aboriginal caregivers' experiences of the diagnostic assessment process. We found that Aboriginal caregivers conceptualised their children's diagnosis and ongoing management in the context of their family networks and community. In contrast, non-Aboriginal caregivers focused on how the diagnosis would affect their child and interactions with various institutions including healthcare systems and schools. Caregivers' engagement with diagnostic reports and resources also followed cultural lines. Reflections on intergenerational drinking were voiced by Aboriginal caregivers, who expressed shame at receiving diagnosis. These findings advance our appreciation of cultural difference in receiving a diagnosis, the examination of which is in its nascent stages. We also suggest ways to mitigate harm from a stigmatising diagnosis and soften the well-established effects of medical dominance over the process of defining a person's capacity and status. (© 2020 Foundation for the Sociology of Health & Illness.)
Databáze:	MEDLINE
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