[Study of the quality of life and adherence to treatment in patients from 2 to 16 years-old with type 1 diabetes mellitus in Andalusia, Spain].

Autor:	Álvarez Casaño M; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Málaga, Málaga, España. Electronic address: mariaac22@hotmail.com., Alonso Montejo MDM; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Málaga, Málaga, España., Leiva Gea I; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Málaga, Málaga, España., Jiménez Hinojosa JM; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Málaga, Málaga, España., Santos Mata MÁ; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Jerez , Cádiz, España., Macías F; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Jerez , Cádiz, España., Romero Pérez MDM; Unidad de Endocrinología Pediátrica, Hospital Virgen Macarena , Sevilla, España., de Toro M; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Jaén, Jaén, España., Martínez G; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Jaén, Jaén, España., Munguira P; Unidad de Endocrinología Pediátrica, Hospital General San Agustín de Linares, Jaén, España., Vivas G; Unidad de Endocrinología Pediátrica, Hospital Serranía de Ronda , Jaén, España., López Siguero JP; Unidad de Endocrinología Pediátrica, Hospital Materno Infantil de Málaga, Málaga, España.
Jazyk:	Spanish; Castilian
Zdroj:	Anales de pediatria [An Pediatr (Engl Ed)] 2021 Feb; Vol. 94 (2), pp. 75-81. Date of Electronic Publication: 2020 Jun 12.
DOI:	10.1016/j.anpedi.2020.03.016
Abstrakt:	Introduction: Diabetes mellitus 1 is the second most frequent chronic disease, and the most frequent endocrine-metabolic disorder in childhood. The estimated prevalence is between 1.1 and 1.4 / 1000 children under 15 years years-old. In Andalusia the prevalence is higher (1.7 per thousand). The objective of the study is to evaluate health-related quality of life (HRQoL) and adherence to treatment, specifically in the paediatric population of Andalusia. Methods: A multicentre cross-sectional observational analytical study was conducted on a sample of 178 patients from six hospitals with a Paediatric Endocrinology Unit. Each patient received two questionnaires; quality of life (PedsQL version 3.0) and adherence to the self-care recommendations (SCI-R) treatment. The demographic, clinical, metabolic control data, and possible complications were also collected. Results: High levels were obtained in both adherence and health-related quality of life (HRQoL). Adherence was inversely related to age and HbA1c. The health-related quality of life (HRQoL) was associated with the use of a continuous real-time glucose monitoring system (MCG-TR) combined with continuous subcutaneous insulin infusion (CSII), as well as with a lower number of severe hypoglycaemia and renal complications. The mean HbA1c was 7.1%. 12,9% of patients used ISCI. 83.2% used capillary glycemia exclusively, while 16.8% used some interstitial glucose monitoring device. Conclusions: This is the first study in Andalusia that analyzes the health-related quality of life (HRQoL) of pediatric patients. The results show high levels of adherence and health-related quality of life (HRQoL), as well as good metabolic control. (Copyright © 2020. Publicado por Elsevier España, S.L.U.)
Databáze:	MEDLINE
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