Quality of Life Among School-Age Children With Autism: The Oak Hill School Outcomes Study.

Autor: Bent S; Department of Psychiatry, University of California, San Francisco, CA; Department of Epidemiology and Biostatistics, University of California, San Francisco, CA. Electronic address: Stephen.bent@ucsf.edu., Wahlberg J; Department of Psychiatry, University of California, San Francisco, CA., Chen Y; Department of Psychiatry, University of California, San Francisco, CA., Widjaja F; Department of Psychiatry, University of California, San Francisco, CA., McDonald MG; Oak Hill School, San Anselmo, CA., Hendren RL; Department of Psychiatry, University of California, San Francisco, CA.
Jazyk: angličtina
Zdroj: Seminars in pediatric neurology [Semin Pediatr Neurol] 2020 Jul; Vol. 34, pp. 100808. Date of Electronic Publication: 2020 Mar 05.
DOI: 10.1016/j.spen.2020.100808
Abstrakt: Prior studies have documented a lower quality of life (QOL) in children with autism spectrum disorder (ASD) compared to typically developing peers, but few studies have examined the trajectory of QOL over time in the same population. We conducted a 2-year cohort study in 29 children attending a specialized school for ASD with quarterly measures of parent-rated QOL as well as parent and teacher measures of behavior and social skills to determine the trajectory of change in QOL and predictors of change. The average change in QOL was constant (no change over time), but there was substantial variation with some students showing significant gains and others showing declines. Exploratory analyses revealed that improvements in behavior and social skills were greater (nonsignificantly) among children with improvements in QOL. Children with improved QOL were also younger and had a lower initial symptom burden. This study suggests that early intervention programs that provide social skills and behavioral management strategies may improve QOL in children with ASD. The study also highlights the need to develop and study novel, qualitative measures of QOL in this population.
(Copyright © 2020 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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