Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK.

Autor:	Kapasi R; Crohn's & Colitis UK, Hatfield, UK., Glatter J; Crohn's & Colitis UK, Hatfield, UK., Lamb CA; Newcastle University, Newcastle upon Tyne, UK.; Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK., Acheson AG; Nottingham University Hospitals NHS Trust, Nottingham, UK., Andrews C; Mendip Vale Medical Practice, Yatton, UK., Arnott ID; Western General Hospital, Edinburgh, UK., Barrett KJ; New Road Surgery, Rickmansworth, UK., Bell G; IBD UK, Hatfield, UK., Bhatnagar G; Frimley Health NHS Foundation Trust, Frimley, UK., Bloom S; University College London Hospitals NHS Foundation Trust, London, UK., Brookes MJ; Royal Wolverhampton Hospitals NHS Trust, Wolverhampton, UK.; University of Wolverhampton, Wolverhampton, UK., Brown SR; Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK., Burch N; University Hospitals Coventry and Warwickshire NHS Trust, Coventry, UK., Burman A; British Dietetic Association, Birmingham, UK., Crook K; St Mark's Hospital, Harrow, UK., Cummings JF; Southampton University NHS Trust, Southampton, UK., Davies J; Addenbrooke's Hospital, Cambridge, Cambridgeshire, UK., Demick A; Ileostomy & Internal Pouch Association, Essex, UK., Epstein J; Chelsea and Westminster Hospital NHS Foundation Trust, London, UK., Faiz O; St Mark's Hospital, Harrow, UK.; Imperial College London, London, UK., Feakins R; Barts Health NHS Trust, London, UK.; Queen Mary University of London, London, UK., Fletcher M; IBD UK, Hatfield, UK., Garrick V; Royal Hospital for Children, Glasgow, UK., Jaffray B; Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.; Great North Children's Hospital, Newcastle upon Tyne, UK., Johnson M; Luton and Dunstable University Hospital NHS Foundation Trust, Luton, UK., Keetarut K; University College London Hospitals NHS Foundation Trust, London, UK., Limdi J; The Pennine Acute Hospitals NHS Trust, Manchester, UK., Meade U; St Mark's Hospital, Harrow, UK.; University of Hertfordshire, Hatfield, UK., Muhammed R; Birmingham Children's Hospital NHS Foundation Trust, Birmingham, UK., Murdock A; Craigavon Area Hospital, Portadown, Armagh, UK., Posford N; CICRA, Sutton, UK., Rowse G; University of Sheffield, Sheffield, UK., Shaw I; Gloucestershire Hospitals NHS Foundation Trust, Cheltenham, UK., St Clair Jones A; Brighton and Sussex University Hospitals NHS Trust, Brighton, UK., Taylor S; University College London Hospitals NHS Foundation Trust, London, UK., Weaver S; Royal Bournemouth and Christchurch Hospitals NHS Foundation Trust, Bournemouth, UK., Younge L; Barts Health NHS Trust, London, UK., Hawthorne AB; University Hospital of Wales, Cardiff, UK.
Jazyk:	angličtina
Zdroj:	Frontline gastroenterology [Frontline Gastroenterol] 2019 Jul 24; Vol. 11 (3), pp. 178-187. Date of Electronic Publication: 2019 Jul 24 (Print Publication: 2020).
DOI:	10.1136/flgastro-2019-101260
Abstrakt:	Objective: Symptoms and clinical course during inflammatory bowel disease (IBD) vary among individuals. Personalised care is therefore essential to effective management, delivered by a strong patient-centred multidisciplinary team, working within a well-designed service. This study aimed to fully rewrite the UK Standards for the healthcare of adults and children with IBD, and to develop an IBD Service Benchmarking Tool to support current and future personalised care models. Design: Led by IBD UK, a national multidisciplinary alliance of patients and nominated representatives from all major stakeholders in IBD care, Standards requirements were defined by survey data collated from 689 patients and 151 healthcare professionals. Standards were drafted and refined over three rounds of modified electronic-Delphi. Results: Consensus was achieved for 59 Standards covering seven clinical domains; (1) design and delivery of the multidisciplinary IBD service; (2) prediagnostic referral pathways, protocols and timeframes; (3) holistic care of the newly diagnosed patient; (4) flare management to support patient empowerment, self-management and access to specialists where required; (5) surgery including appropriate expertise, preoperative information, psychological support and postoperative care; (6) inpatient medical care delivery (7) and ongoing long-term care in the outpatient department and primary care setting including shared care. Using these patient-centred Standards and informed by the IBD Quality Improvement Project (IBDQIP), this paper presents a national benchmarking framework. Conclusions: The Standards and Benchmarking Tool provide a framework for healthcare providers and patients to rate the quality of their service. This will recognise excellent care, and promote quality improvement, audit and service development in IBD. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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