The Streetlight Effect: Regulating Genomics Where the Light Is.

Autor: Evans BJ; Barbara J. Evans, J.D., Ph.D., LL.M., is Mary Ann and Lawrence E. Faust Professor of Law and Director, Center for Biotechnology & Law, University of Houston Law Center. She is also Professor of Electrical and Computer Engineering, University of Houston Cullen College of Engineering.
Jazyk: angličtina
Zdroj: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2020 Mar; Vol. 48 (1), pp. 105-118.
DOI: 10.1177/1073110520916998
Abstrakt: Regulatory policy for genomic testing may be subject to biases that favor reliance on existing regulatory frameworks even when those frameworks carry unintended legal consequences or may be poorly tailored to the challenges genomic testing presents. This article explores three examples drawn from genetic privacy regulation, oversight of clinical uses of genomic information, and regulation of genomic software. Overreliance on expedient regulatory approaches has a potential to undercut complete and durable solutions.
Databáze: MEDLINE