| Autor: |
Prictor M; Megan Prictor, Ph.D., is a Research Fellow in health, law and emerging technologies at Melbourne Law School, the University of Melbourne, Australia. Her interdisciplinary research focuses on informed consent approaches, electronic health records and data privacy. Sharon Huebner, Ph.D., is a Research Fellow at the University of Melbourne's Indigenous Studies Unit and an honorary Research Fellow at the Monash Indigenous Studies Centre, Monash University. She has worked with Aboriginal and Torres Strait Islander families for the past two decades protecting and preserving intergenerational rights to cultural heritage, including the digital return of material culture from archives, libraries and museums. Harriet J.A. Teare, D.Phil. (Chemistry), is a researcher in healthcare and policy, and Deputy Director of the Centre for Health, Law and Emerging Technologies (HeLEX), the University of Oxford. Over the past 6 years she has been developing dynamic consent approaches, working with different patient groups and organisations to learn directly from potential users about how such a tool could benefit their research experience. Luke Burchill, Ph.D., is an Associate Professor of Medicine at the University of Melbourne, where he leads the Aboriginal cardiovascular health disparities program. Clinically he works as an Adult Congenital Heart Disease Specialist at Royal Melbourne Hospital. Associate Professor Burchill is the first Aboriginal cardiologist in Australia. Jane Kaye, D.Phil., is the Director of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also leads the HeLEX@Melbourne research team. The focus of Professor Kaye's research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research., Huebner S; Megan Prictor, Ph.D., is a Research Fellow in health, law and emerging technologies at Melbourne Law School, the University of Melbourne, Australia. Her interdisciplinary research focuses on informed consent approaches, electronic health records and data privacy. Sharon Huebner, Ph.D., is a Research Fellow at the University of Melbourne's Indigenous Studies Unit and an honorary Research Fellow at the Monash Indigenous Studies Centre, Monash University. She has worked with Aboriginal and Torres Strait Islander families for the past two decades protecting and preserving intergenerational rights to cultural heritage, including the digital return of material culture from archives, libraries and museums. Harriet J.A. Teare, D.Phil. (Chemistry), is a researcher in healthcare and policy, and Deputy Director of the Centre for Health, Law and Emerging Technologies (HeLEX), the University of Oxford. Over the past 6 years she has been developing dynamic consent approaches, working with different patient groups and organisations to learn directly from potential users about how such a tool could benefit their research experience. Luke Burchill, Ph.D., is an Associate Professor of Medicine at the University of Melbourne, where he leads the Aboriginal cardiovascular health disparities program. Clinically he works as an Adult Congenital Heart Disease Specialist at Royal Melbourne Hospital. Associate Professor Burchill is the first Aboriginal cardiologist in Australia. Jane Kaye, D.Phil., is the Director of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also leads the HeLEX@Melbourne research team. The focus of Professor Kaye's research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research., Teare HJA; Megan Prictor, Ph.D., is a Research Fellow in health, law and emerging technologies at Melbourne Law School, the University of Melbourne, Australia. Her interdisciplinary research focuses on informed consent approaches, electronic health records and data privacy. Sharon Huebner, Ph.D., is a Research Fellow at the University of Melbourne's Indigenous Studies Unit and an honorary Research Fellow at the Monash Indigenous Studies Centre, Monash University. She has worked with Aboriginal and Torres Strait Islander families for the past two decades protecting and preserving intergenerational rights to cultural heritage, including the digital return of material culture from archives, libraries and museums. Harriet J.A. Teare, D.Phil. (Chemistry), is a researcher in healthcare and policy, and Deputy Director of the Centre for Health, Law and Emerging Technologies (HeLEX), the University of Oxford. Over the past 6 years she has been developing dynamic consent approaches, working with different patient groups and organisations to learn directly from potential users about how such a tool could benefit their research experience. Luke Burchill, Ph.D., is an Associate Professor of Medicine at the University of Melbourne, where he leads the Aboriginal cardiovascular health disparities program. Clinically he works as an Adult Congenital Heart Disease Specialist at Royal Melbourne Hospital. Associate Professor Burchill is the first Aboriginal cardiologist in Australia. Jane Kaye, D.Phil., is the Director of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also leads the HeLEX@Melbourne research team. The focus of Professor Kaye's research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research., Burchill L; Megan Prictor, Ph.D., is a Research Fellow in health, law and emerging technologies at Melbourne Law School, the University of Melbourne, Australia. Her interdisciplinary research focuses on informed consent approaches, electronic health records and data privacy. Sharon Huebner, Ph.D., is a Research Fellow at the University of Melbourne's Indigenous Studies Unit and an honorary Research Fellow at the Monash Indigenous Studies Centre, Monash University. She has worked with Aboriginal and Torres Strait Islander families for the past two decades protecting and preserving intergenerational rights to cultural heritage, including the digital return of material culture from archives, libraries and museums. Harriet J.A. Teare, D.Phil. (Chemistry), is a researcher in healthcare and policy, and Deputy Director of the Centre for Health, Law and Emerging Technologies (HeLEX), the University of Oxford. Over the past 6 years she has been developing dynamic consent approaches, working with different patient groups and organisations to learn directly from potential users about how such a tool could benefit their research experience. Luke Burchill, Ph.D., is an Associate Professor of Medicine at the University of Melbourne, where he leads the Aboriginal cardiovascular health disparities program. Clinically he works as an Adult Congenital Heart Disease Specialist at Royal Melbourne Hospital. Associate Professor Burchill is the first Aboriginal cardiologist in Australia. Jane Kaye, D.Phil., is the Director of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also leads the HeLEX@Melbourne research team. The focus of Professor Kaye's research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research., Kaye J; Megan Prictor, Ph.D., is a Research Fellow in health, law and emerging technologies at Melbourne Law School, the University of Melbourne, Australia. Her interdisciplinary research focuses on informed consent approaches, electronic health records and data privacy. Sharon Huebner, Ph.D., is a Research Fellow at the University of Melbourne's Indigenous Studies Unit and an honorary Research Fellow at the Monash Indigenous Studies Centre, Monash University. She has worked with Aboriginal and Torres Strait Islander families for the past two decades protecting and preserving intergenerational rights to cultural heritage, including the digital return of material culture from archives, libraries and museums. Harriet J.A. Teare, D.Phil. (Chemistry), is a researcher in healthcare and policy, and Deputy Director of the Centre for Health, Law and Emerging Technologies (HeLEX), the University of Oxford. Over the past 6 years she has been developing dynamic consent approaches, working with different patient groups and organisations to learn directly from potential users about how such a tool could benefit their research experience. Luke Burchill, Ph.D., is an Associate Professor of Medicine at the University of Melbourne, where he leads the Aboriginal cardiovascular health disparities program. Clinically he works as an Adult Congenital Heart Disease Specialist at Royal Melbourne Hospital. Associate Professor Burchill is the first Aboriginal cardiologist in Australia. Jane Kaye, D.Phil., is the Director of the Centre for Health, Law, and Emerging Technologies (HeLEX) at the University of Oxford and has a part-time Professorship at the University of Melbourne, Australia, where she also leads the HeLEX@Melbourne research team. The focus of Professor Kaye's research is on governance with an emphasis on personalised medicine, biobanks, privacy, data-sharing frameworks, international governance and translational research. |
