Informing MS patients on treatment options: a consensus on the process of consent taking.

Autor: Tortorella C; Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy. carla.tortorella@gmail.com., Solaro C; Department of Rehabilitation, Mons L Novarese Hospital, Moncrivello, Italy., Annovazzi P; Multiple Sclerosis Center, ASST Valle Olona, PO di Gallarate, (VA), Italy., Boffa L; Department of Neurosciences, MS Center, Tor Vergata University, Rome, Italy., Buscarinu MC; Department of Neurosciences, Mental Health and Sensory Organs Sapienza University Rome, Rome, Italy., Buttari F; I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy., Calabrese M; Neurology B, Department of Neurosciences Biomedicine and Movements, University of Verona, Verona, Italy., Cavalla P; MS Center (P.C.), City of Health & Science University Hospital, Turin, Italy., Cocco E; Department Medical Science and Public Health, University of Cagliari, Cagliari, Italy., Cordioli C; Multiple Sclerosis Center, ospedale di Montichiari, Spedali Civili di Brescia, Montichiari, Italy., De Luca G; Neurology Clinic, Multiple Sclerosis Center SS. Annunziata Hospital, Chieti, Italy., Di Filippo M; Clinica Neurologica, Dipartimento di Medicina, Università di Perugia, Perugia, Italy., Fantozzi R; I.R.C.C.S. Istituto Neurologico Mediterraneo NEUROMED, Pozzilli, Italy., Ferraro D; Department of Biomedical, Metabolic and Neurosciences, University of Modena and Reggio Emilia, Modena, Italy., Gajofatto A; Department of Neuroscience, Biomedicine and Movement Sciences, University of Verona, Verona, Italy., Gallo A; Department of Medical, Surgical, Neurological, Metabolic and Aging Science, University of Campania, Naples, Italy., Lanzillo R; Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy., Laroni A; Department of Neuroscience, Ophthalmology, Genetics, Maternal and Child Health and Center of Excellence for Biomedical Research, University of Genova, Genoa, Italy.; IRCCS Ospedale Policlinico San Martino, Genoa, Italy., Fermo SL; Clinica Neurologica A.O.U. Policlinico-Vittorio Emanuele Catania, Catania, Italy., Malucchi S; Neurologia 2-CRESM, AOU San Luigi Gonzaga, Orbassano, Italy., Maniscalco GT; Department of Neurology and Stroke Unit, 'A. Cardarelli Hospital', Naples, Italy., Moccia M; Multiple Sclerosis Clinical Care and Research Centre, Department of Neuroscience, Reproductive Science and Odontostomatology, Federico II University, Naples, Italy.; Queen Square MS Centre, Department of Neuroinflammation, UCL Queen Square Institute of Neurology, Faculty of Brain Sciences, University College London, London, UK., Nociti V; Istituto di Neurologia, Fondazione Policlinico Universitario 'A Gemelli' IRCCS, Rome, Italy., Paolicelli D; Department of Basic Medical Sciences, Neurosciences, and Sense Organs, University of Bari, Bari, Italy., Pesci I; Ospedale di Vaio, Centro SM, Fidenza, Parma, Italy., Prosperini L; Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy., Ragonese P; Department of Biomedicine, Neurosciences and Advanced Diagnostic, Dipartimento di Biomedicina, Neuroscienze e Diagnostica Avanzata, Palermo, Italy., Tomassini V; Department of Neurosciences, Imaging and Clinical Sciences, School of Medicine, Institute for Advanced Biomedical Technologies (ITAB), University of Chieti-Pescara 'G. d'Annunzio, Chieti, Italy.; Division of Psychological Medicine and Clinical Neurosciences, Cardiff University School of Medicine, University Hospital of Wales, Cardiff, UK., Clerici VLAT; Neuro-immunology and Neuromuscolar Diseases Unit, IRCCS Foundation Carlo Besta Neurological Institute, Milan, Italy., Rodegher M; Department of Neurology, San Raffaele Scientific Institute, Vita-Salute San Raffaele University, Milan, Italy., Gherardi M; SC Medicina Legale AUSL Valle D'Aosta, Aosta, Italy., Gasperini C; Department of Neurosciences, San Camillo Forlanini Hospital, Rome, Italy.
Jazyk: angličtina
Zdroj: Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology [Neurol Sci] 2020 Aug; Vol. 41 (8), pp. 2249-2253. Date of Electronic Publication: 2020 Apr 02.
DOI: 10.1007/s10072-020-04339-z
Abstrakt: In the last years, change in multiple sclerosis (MS) therapeutic scenario has highlighted the need for an improved doctor-patient communication in advance of treatment initiation in order to allow patient's empowerment in the decision-making process. AIMS: The aims of our project were to review the strategies used by Italian MS specialists to inform patients about treatment options and to design a multicentre shared document that homogenizes the information about disease-modifying treatment (DMTs) and the procedure of taking informed consent in clinical practice. RESULTS: The new resource, obtained by consensus among 31 neurologists from 27 MS Centres in Italy with the supervision of a medico-legal advisor, received the aegis of Italian Neurological Society (SIN) and constitutes a step toward a standardized decision process around DMTs in MS.
Databáze: MEDLINE
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