Outcomes in patients with chronic uveitis: which factors matter to patients? A qualitative study.

Autor: Stolk-Vos AC; Rotterdam Ophthalmic Institute, Schiedamse Vest 160, Rotterdam, 3011 BH, The Netherlands. a.stolk@eyehospital.nl.; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands. a.stolk@eyehospital.nl.; Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center, Rotterdam, The Netherlands. a.stolk@eyehospital.nl., Kasigar H; The Rotterdam Eye Hospital, Rotterdam, The Netherlands., Nijmeijer KJ; The Rotterdam Eye Hospital, Rotterdam, The Netherlands., Missotten TO; The Rotterdam Eye Hospital, Rotterdam, The Netherlands., Busschbach JJ; Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center, Rotterdam, The Netherlands., van de Klundert JJ; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.; Prince Mohammad Bin Salman School of Business and Entrepreneurship, King Abdullah Economic City, Saudi Arabia., Kranenburg LW; Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Center, Rotterdam, The Netherlands.
Jazyk: angličtina
Zdroj: BMC ophthalmology [BMC Ophthalmol] 2020 Mar 30; Vol. 20 (1), pp. 125. Date of Electronic Publication: 2020 Mar 30.
DOI: 10.1186/s12886-020-01388-y
Abstrakt: Purpose: Outcome measurements currently used in chronic uveitis care fail to cover the full patient perspective. The aim of this study is to develop a conceptual model of the factors that adult patients with chronic uveitis consider to be important when evaluating the impact of their disease and treatment.
Methods: A qualitative study design was used. Twenty chronic uveitis patients were recruited to participate in two focus groups. Data were transcribed verbatim and analysed using thematic analysis in ATLAS.ti.
Results: Coding of the transcripts resulted in a total of 19 codes divided over five themes: 1) disease symptoms and treatment; 2) diagnosis and treatment process; 3) impact on daily functioning; 4) emotional impact; and 5) treatment success factors.
Conclusion: The conceptual model resulting from this study can contribute to the development of future uveitis specific measures in adults.
Databáze: MEDLINE
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