Telling, Hearing, and Believing: A Critical Analysis of Narrative Bioethics.

Autor: Saulnier KM; Centre of Genomics and Policy, 740 Dr Penfield Ave, Room 5206, Montreal, Quebec, H3A 0G1, Canada. katie.saulnier@mcgill.ca.
Jazyk: angličtina
Zdroj: Journal of bioethical inquiry [J Bioeth Inq] 2020 Jun; Vol. 17 (2), pp. 297-308. Date of Electronic Publication: 2020 Mar 16.
DOI: 10.1007/s11673-020-09973-y
Abstrakt: Narrative ethics taps into an inherent human need to tell our own stories centred on our own moral values and to have those stories heard and acknowledged. However, not everyone's words are afforded equal power. The use of narrative ethics in bioethical decision-making is problematized by a disparity in whose stories are told, whose stories are heard, and whose stories are believed. Here, I conduct an analysis of narrative ethics through a critical theory lens to show how entrenched patterns of narrative neglect in medicine are harming not only our capacity to make use of narrative ethics but also our capacity to deliver effective healthcare. To illustrate this point, I use three examples where the patient's gender affects how their stories unfold: autism, weight, and pain management. From these, I argue that the use of narrative ethics without the application of a critical theory lens risks the exacerbation of what Miranda Fricker refers to as "testimonial injustice," the prima facie harm experienced by individuals whose credibility is undermined by others' prejudices. Finally, I suggest that narrative ethics can be a powerful tool for mitigating oppressive practices in medicine if we couple it with critical analysis that enables us to understand the power dynamics at play in storytelling.
Databáze: MEDLINE