The ENABLE study protocol: Understanding and characterising the value and role of self-management support for people living with cancer that is treatable but not curable.

Autor:	Calman L; Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton, UK., Radcliffe E; Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton, UK., Berman R; The Christie NHS Foundation Trust, Manchester, UK., Demain S; Faculty of Health and Human Sciences, University of Plymouth, Plymouth, UK., Restorick-Banks S; Patient representative., Richardson A; University of Southampton and University Hospital Southampton, Southampton, UK., Wagland R; Faculty of Health Sciences, University of Southampton, Southampton, UK., Foster C; Macmillan Survivorship Research Group, Faculty of Health Sciences, University of Southampton, Southampton, UK.
Jazyk:	angličtina
Zdroj:	European journal of cancer care [Eur J Cancer Care (Engl)] 2020 Mar; Vol. 29 (2), pp. e13217. Date of Electronic Publication: 2020 Jan 20.
DOI:	10.1111/ecc.13217
Abstrakt:	Objective: Attention is turning to the needs of people living with treatable but incurable cancer, a group with complex needs, living with uncertainty over time. More research is needed to understand how this group self-manage the impact of cancer to strengthen the evidence base for interventions. This study aims to understand the value and outcomes of self-management support for people living with treatable but incurable cancer. Methods: Qualitative longitudinal methods will examine how support needs change over time in relation to self-management and unpredictable disease trajectories. Thirty patients and 30 carers will be recruited from two hospitals, each participating in three interviews over 1 year. Patients will be purposively sampled according to age, gender, cancer type and anticipated survival. Carers will be recruited via nomination by patients but interviewed separately. One-off interviews will be conducted with 20 healthcare professionals, providing data from multiple perspectives. Based on interview findings, a modified Delphi process will map areas of consensus and disparity regarding conceptualisations and outcomes of self-management support. Conclusion: The key output will be practice recommendations in relation to self-management support, producing evidence to inform service innovation for those living with treatable but incurable cancer. (© 2020 John Wiley & Sons Ltd.)
Databáze:	MEDLINE
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