Philosophy of care delivery for spina bifida.

Autor: Thibadeau J; Spina Bifida Association, 1600 Wilson Blvd., Suite 800, Arlington, VA, 22209, USA. Electronic address: jthibadeau@sbaa.org., Walker WO Jr; Chief, Division of Developmental Medicine, Seattle Children's Hospital, Robert A. Aldrich Professor, Department of Pediatrics, University of Washington School of Medicine, USA., Castillo J; Developmental-Behavioral Pediatrics, Texas Children's Hospital, Baylor College of Medicine, USA., Dicianno BE; University of Pittsburgh School of Medicine, Department of Physical Medicine and Rehabilitation, Pittsburgh, PA, USA; Human Engineering Research Laboratories, VA Pittsburgh Healthcare System, Pittsburgh, PA, USA., Routh JC; Duke University School of Medicine, USA., Smith KA; USC University Center for Excellence in Developmental Disabilities, Spina Bifida Program, Children's Hospital Los Angeles, Clinical Pediatrics, Keck School of Medicine, University of Southern California, USA., Ouyang L; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, USA.
Jazyk: angličtina
Zdroj: Disability and health journal [Disabil Health J] 2020 Apr; Vol. 13 (2), pp. 100883. Date of Electronic Publication: 2019 Dec 20.
DOI: 10.1016/j.dhjo.2019.100883
Abstrakt: The multidisciplinary model (MCM) is described as one that utilizes skills and experience from practitioners belonging to various disciplines, each treating patients from a specific clinical perspective. 1 The Spina Bifida Association (SBA) supports and recommends that clinical care for people with Spina Bifida (SB) be provided in specialty clinics of which the MCM is an example; that care be coordinated; and that there be a plan for transitional care. 2 This paper explores the challenges the MCM faces with a transitioning and aging population in a care system that calls for a positive patient experience, engaged health care professionals, desired outcomes, with consideration of cost.
Competing Interests: Declaration of competing interest The authors have no conflicts of interest.
(Copyright © 2019 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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