A Theoretically Grounded Exploration of Individual and Family Self-Management of Polycystic Ovary Syndrome in Adolescents.

Autor: Young CC; School of Nursing, University of Texas System , Austin, Texas, USA., Sagna AO; School of Nursing, University of Texas System , Austin, Texas, USA., Monge M; Dell Medical School, University of Texas System , Austin, Texas, USA., Rew L; School of Nursing, University of Texas System , Austin, Texas, USA.
Jazyk: angličtina
Zdroj: Comprehensive child and adolescent nursing [Compr Child Adolesc Nurs] 2020 Dec; Vol. 43 (4), pp. 348-362. Date of Electronic Publication: 2019 Oct 23.
DOI: 10.1080/24694193.2019.1679278
Abstrakt: Polycystic ovary syndrome (PCOS) is highly prevalent and increasingly diagnosed during adolescence. This study explored the context and processes of self-management among adolescents, and parents of adolescents, who have PCOS. Adolescents with PCOS (n = 7) and their parents (n = 8) participated in a series of focus groups. Deductive thematic analysis was guided by the Individual and Family Self-Management Theory (IFSMT), and the patterns that were identified aligned with the contexts and processes described therein. A secondary inductive approach was employed as a novel contextual pattern emerged: psychological health and well-being. Study findings suggest that adolescents and their families have a desire to engage in optimal self-management, and particularly effective strategies may consider a holistic, family intervention approach that addresses psychological health and well-being in addition to behavior change. Study findings are the first to reflect the unique needs of adolescents with PCOS and their families.
Databáze: MEDLINE
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