Preparing Families of Technology-Dependent Children for Emergencies.
| Autor: | Gillen JK; Department of Pediatrics, Division of Critical Care, Icahn School of Medicine at Mount Sinai, New York, New York; and jennifer.gillen@mssm.edu., Morris MC; Department of Pediatrics, Division of Critical Care, Columbia University, New York, New York. |
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| Jazyk: | angličtina |
| Zdroj: | Hospital pediatrics [Hosp Pediatr] 2019 Nov; Vol. 9 (11), pp. 874-879. Date of Electronic Publication: 2019 Oct 07. |
| DOI: | 10.1542/hpeds.2019-0091 |
| Abstrakt: | Objectives: To characterize the baseline level of emergency preparedness among families of technology-dependent children admitted to our PICU and to determine if an ICU-based planning intervention can sustainably improve families' disaster preparedness. Methods: A single-arm, survey-based study used to assess participants' preparedness to handle a 72-hour home power outage on the basis of a novel 8-point checklist. Parents of patients in the study completed the survey questions when their child was admitted to the PICU, discharged, or transferred from the PICU, after at least 2 weeks at home, and after at least 6 months at home. This study included a cohort of 50 children younger than18 years old who required daily use of at least 1 piece of qualifying electronic medical equipment at home and their custodial parents. The checklist surveyed was designed with the goals of maximizing care capacity at home during a power outage and planning for evacuation. Counseling and other resources were provided on the basis of item completion at admission assessment. Results: Patients' families completed a median of 3 items (range: 0-8; N = 50) at admission, 4 items (range: 1-8; n = 45) at discharge, and 7 items (range: 3-8; n = 37) at the 2-week follow-up and retained 7 items (range: 5-8; n = 29) at the 6-month follow-up. Completion rates were significantly higher at each follow-up time point compared with baseline ( P < .001). Conclusions: Families of technology-dependent children admitted to our PICU have significant disaster-preparedness needs, which can be addressed with an inpatient intervention. Competing Interests: POTENTIAL CONFLICT OF INTEREST: The authors have indicated they have no potential conflicts of interest to disclose. (Copyright © 2019 by the American Academy of Pediatrics.) |
| Databáze: | MEDLINE |
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