Perspectives on decision making amongst older people with end-stage renal disease and caregivers in Singapore: A qualitative study.

Autor: Han E; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore., Haldane V; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore., Koh JJK; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore., Quek RYC; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore., Ozdemir S; Duke NUS Medical School, Singapore, Singapore., Finkelstein EA; Duke NUS Medical School, Singapore, Singapore., Jafar TH; Duke NUS Medical School, Singapore, Singapore., Choong HL; Department of Renal Medicine, Singapore General Hospital, Singapore, Singapore., Gan S; Department of Renal Medicine, Singapore General Hospital, Singapore, Singapore., Lim LWW; Department of Renal Medicine, Singapore General Hospital, Singapore, Singapore., Shiraz F; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore., Legido-Quigley H; Saw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.; London School of Hygiene and Tropical Medicine, London, UK.
Jazyk: angličtina
Zdroj: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2019 Oct; Vol. 22 (5), pp. 1100-1110. Date of Electronic Publication: 2019 Aug 16.
DOI: 10.1111/hex.12943
Abstrakt: Background: End-stage renal disease (ESRD) is increasing both globally and in Asia. Singapore has the fifth highest incidence of ESRD worldwide, a trend that is predicted to rise. Older patients with ESRD are faced with a choice of haemodialysis, peritoneal dialysis or conservative management, all of which have their risks and benefits.
Objective: This study seeks to explore perspectives on decision making amongst older (≥70) Singaporean ESRD patients and their caregivers to undergo (or not to undergo) dialysis.
Design: Qualitative study design using semi-structured interviews.
Setting and Participants: Twenty-three participants were recruited from the largest tertiary hospital in Singapore: seven peritoneal dialysis patients, five haemodialysis patients, four patients on conservative management and seven caregivers.
Results: While some patients believed that they had made an independent treatment decision, others reported feeling like they had no choice in the matter or that they were strongly persuaded by their doctors and/or family members to undergo dialysis. Patients reported decision-making factors including loss of autonomy in daily life, financial burden (on themselves or on their families), caregiving burden, alternative medicine, symptoms and disease progression. Caregivers also reported concerns about financial and caregiving burden.
Discussion and Conclusion: This study has identified several factors that should be considered in the design and implementation of decision aids to help older ESRD patients in Singapore make informed treatment decisions, including patients' and caregivers' decision-making factors as well as the relational dynamics between patients, caregivers and doctors.
(© 2019 The Authors Health Expectations published by John Wiley & Sons Ltd.)
Databáze: MEDLINE
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