Evaluation of quality of life in hemophilia patients using the WHOQOL-bref and Haemo-A-Qol questionnaires.

Autor:	Trindade GC; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Viggiano LGL; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Brant ER; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Lopes CAO; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Faria ML; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Ribeiro PHNS; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Silva AFDC; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Souza DMR; Fundação Centro de Hematologia e Hemoterapia do Estado de Minas Gerais, (Hemominas), Divinópolis, MG, Brazil., Lopes AF; Fundação Centro de Hematologia e Hemoterapia do Estado de Minas Gerais, (Hemominas), Divinópolis, MG, Brazil., Soares JMA; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil., Pinheiro MB; Universidade Federal de São João Del Rei (UFSJ), Divinópolis, MG, Brazil. Electronic address: melinapinheiro@ufsj.edu.br.
Jazyk:	angličtina
Zdroj:	Hematology, transfusion and cell therapy [Hematol Transfus Cell Ther] 2019 Oct - Dec; Vol. 41 (4), pp. 335-341. Date of Electronic Publication: 2019 Jul 04.
DOI:	10.1016/j.htct.2019.03.010
Abstrakt:	Introduction: Hemophilia is a coagulopathy caused by a deficiency in coagulation factors VIII (hemophilia A) or IX (hemophilia B). It is a chronic disease and, hence, impairs the quality of life (Qol) of the patients. This study aimed to evaluate the Qol of patients with hemophilia using the WHOQOL-bref and the Haemo-A-Qol instruments, its relation to the clinical condition and its sociodemographic variables. Methods: This is a cross-sectional, epidemiological study, comprising 17 patients with hemophilia, registered at the hemocenter, who met the eligibility criteria. Data were collected using three questionnaires: a semi-structured clinical evaluation form, the WHOQOL-bref and the Haem-A-Qol. Results: The average age was 30 years old, and most participants declared themselves to be single (58.82%), without children (64.70%) and employed (58.82%). Hemophilia A was observed in 14 patients and the most severe form of the disease was more prevalent (64.70%). The average score of Qol, estimated by the WHOQOL-bref questionnaire was 74.3; being "social relations" the domain with the highest average. The Haem-A-Qol measured an average of 36.2 and the domain with the highest result was "Family Planning". Conclusion: Hemophilia had a higher negative impact upon the physical, sports and leisure features in the sample subjects. The analysis of the questionnaires did not reveal statistical agreement between them. Based on this, the Haem-A-Qol is considered the most recommended to evaluate the Qol, as it addresses factors more specifically related to the disease. No statistical significance was observed between the scores of Qol, as for the presence of comorbidities, gravity of the hemophilia and positive serology for infections. (Copyright © 2019 Associação Brasileira de Hematologia, Hemoterapia e Terapia Celular. Published by Elsevier Editora Ltda. All rights reserved.)
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu