Content and Quality of Websites for Patients With Chronic Kidney Disease: An Environmental Scan.

Autor: Smekal M; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada., Gil S; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada., Donald M; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada.; Department of Community Health Sciences, University of Calgary, AB, Canada., Beanlands H; Daphne Cockwell School of Nursing, Ryerson University, Toronto, ON, Canada., Straus S; Department of Medicine, University of Toronto, ON, Canada.; Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, ON, Canada., Herrington G; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Sparkes D; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Harwood L; London Health Sciences Centre, ON, Canada., Tong A; Sydney School of Public Health, The University of Sydney, NSW, Australia., Grill A; Department of Family & Community Medicine, University of Toronto, ON, Canada., Tu K; Department of Family & Community Medicine, University of Toronto, ON, Canada., Waldvogel B; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Large C; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Large C; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Novak M; Department of Psychiatry, University of Toronto, ON, Canada., James M; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada.; Department of Community Health Sciences, University of Calgary, AB, Canada., Elliott M; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada., Delgado M; Can-SOLVE CKD Network Patient Partners, Vancouver, BC, Canada., Brimble S; Department of Medicine, McMaster University, Hamilton, ON, Canada., Samuel S; Department of Community Health Sciences, University of Calgary, AB, Canada.; Department of Pediatrics, University of Calgary, AB, Canada., Hemmelgarn BR; Department of Medicine, Cumming School of Medicine, University of Calgary, AB, Canada.; Department of Community Health Sciences, University of Calgary, AB, Canada.
Jazyk: angličtina
Zdroj: Canadian journal of kidney health and disease [Can J Kidney Health Dis] 2019 Jul 30; Vol. 6, pp. 2054358119863091. Date of Electronic Publication: 2019 Jul 30 (Print Publication: 2019).
DOI: 10.1177/2054358119863091
Abstrakt: Background: Although numerous websites for patients with chronic kidney disease (CKD) are available, little is known about their content and quality.
Objective: To evaluate the quality of CKD websites, and the degree to which they align with information needs identified by patients with CKD.
Methods: We identified websites by entering "chronic kidney disease" in 3 search engines: Google.com (with regional variants for Australia, Canada, the United Kingdom, and the United States), Bing.com, and Yahoo.com. We included the first 50 unique English-language sites from each search. We evaluated website content using a 30-point scale comprising 8 priority content domains identified by patients with CKD ( understanding CKD, diet, symptoms, medications, mental/physical health, finances, travel , and work/school ). We used standardized tools to evaluate usability, reliability, and readability (DISCERN, HONcode, LIDA, Reading Ease, and Reading Grade Level). Two reviewers independently conducted the search, screen, and evaluation.
Results: Of the 2093 websites identified, 115 were included. Overall, sites covered a mean (SD) of 29% (17.8) of the CKD content areas. The proportion of sites covering content related to understanding CKD, symptoms , and diet was highest (97%, 80%, and 72%, respectively). The proportion of sites covering travel, finances , and work/school content was lowest (22%, 12%, and 12%, respectively). The mean (SD) scores for DISCERN, LIDA and HONcode were 68% (14.6), 71% (14.4), and 75% (17.2), respectively, considered above average for usability and reliability. The mean (SD) Reading Grade Level was 10.6 (2.8) and Reading Ease was 49.8 (14.4), suggesting poor readability.
Conclusions: Although many CKD web sites were of reasonable quality, their readability was poor. Furthermore, most sites covered less than 30% of the content patients identified as important for CKD self-management. These results will inform content gaps in internet-accessible information on CKD self-management that should be addressed by future eHealth web-based tools.
Competing Interests: Declaration of Conflicting Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze: MEDLINE