Patient perspectives in sarcoidosis.
| Autor: | van Helmondt SJ; Department of Pulmonology, ILD Center of Excellence, St. Antonius Hospital, Nieuwegein, The Netherlands., Polish LB; University of Vermont Larner College of Medicine, Burlington, Vermont, USA., Judson MA; Albany Medical College, Albany, New York, USA., Grutters JC; Department of Pulmonology, ILD Center of Excellence, St. Antonius Hospital, Nieuwegein, The Netherlands.; Division of Heart and Lungs, University Medical Center, Utrecht, The Netherlands. |
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| Jazyk: | angličtina |
| Zdroj: | Current opinion in pulmonary medicine [Curr Opin Pulm Med] 2019 Sep; Vol. 25 (5), pp. 478-483. |
| DOI: | 10.1097/MCP.0000000000000602 |
| Abstrakt: | Purpose of Review: The review presents an overview of the scientific publications about patient perspectives in sarcoidosis. Recent Findings: The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries. Summary: There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care. |
| Databáze: | MEDLINE |
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