Predictors of Psychosocial Distress in Parents of Young Children with Disorders of Sex Development.

Autor:	Perez MN; Oklahoma State University, Stillwater, Oklahoma., Delozier AM; Oklahoma State University, Stillwater, Oklahoma., Aston CE; University of Oklahoma Health Sciences Center, Oklahoma City, Oklahoma., Austin P; Texas Children's Hospital and Baylor College of Medicine, Houston, Texas., Baskin L; University of California San Francisco Medical Center, San Francisco, California., Chan YM; Boston Children's Hospital, Boston, Massachusetts., Cheng EY; Lurie Children's Hospital of Chicago, Chicago, Illinois., Diamond DA; Boston Children's Hospital, Boston, Massachusetts., Fried A; John R. Oishei Children's Hospital, Buffalo, New York., Greenfield S; John R. Oishei Children's Hospital, Buffalo, New York., Kolon T; Children's Hospital of Philadelphia, Philadelphia, Pennsylvania., Kropp B; Cook Children's Medical Center, Ft. Worth, Texas., Lakshmanan Y; Children's Hospital of Michigan, Detroit, Michigan., Meyer S; John R. Oishei Children's Hospital, Buffalo, New York., Meyer T; Lurie Children's Hospital of Chicago, Chicago, Illinois., Nokoff N; Children's Hospital Colorado, Aurora, Colorado., Palmer B; Cook Children's Medical Center, Ft. Worth, Texas., Paradis A; St. Louis Children's Hospital, St. Louis, Missouri., Poppas D; New York Presbyterian Hospital/Weill Cornell Medicine, New York, New York., Scott Reyes KJ; Cook Children's Medical Center, Ft. Worth, Texas., Swartz JM; Boston Children's Hospital, Boston, Massachusetts., Tishelman A; Boston Children's Hospital, Boston, Massachusetts., Wisniewski AB; Oklahoma State University, Stillwater, Oklahoma., Wolfe-Christensen C; Cook Children's Medical Center, Ft. Worth, Texas., Yerkes E; Children's Hospital Colorado, Aurora, Colorado., Mullins LL; Oklahoma State University, Stillwater, Oklahoma.
Jazyk:	angličtina
Zdroj:	The Journal of urology [J Urol] 2019 Nov; Vol. 202 (5), pp. 1046-1051. Date of Electronic Publication: 2019 Oct 09.
DOI:	10.1097/JU.0000000000000424
Abstrakt:	Purpose: We evaluated demographic, financial and support predictors of distress for parents of young children with disorders of sex development including atypical genital development, and characterized early parental experiences. This work extends our previous findings to identify those parents at risk for distress. Materials and Methods: Participants included mothers (76) and fathers (63) of a child (78) diagnosed with disorders of sex development characterized by moderate to severe genital atypia. Parents completed a demographic questionnaire, measures of anxious and depressive symptoms, quality of life, illness uncertainty and posttraumatic stress symptoms, and rated their satisfaction with the appearance of their child's genitalia. Results: Depressive and posttraumatic stress symptoms of caregivers were comparable to standardized norms while levels of anxious symptoms were below norms. A subset of parents reported clinically elevated symptoms. Overall 26% of parents reported anxious symptoms, 24% reported depressive symptoms and 17% reported posttraumatic stress symptoms. Levels of illness uncertainty were lower than those of parents of children with other chronic illnesses. Differences by parent sex emerged, with mothers reporting greater distress. Lower income, increased medical care and travel expenses, and having no other children were related to increased psychosocial distress. Conclusions: Early psychosocial screening is recommended for parents of children with disorders of sex development. Clinicians should be aware that financial burden and lack of previous parenting experience are risk factors for distress.
Databáze:	MEDLINE
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