Essential knowledge for patients with rheumatoid arthritis or spondyloarthritis: Results of a multicentric survey in France among health professionals and patients.

Autor: Beauvais C; Service de rhumatologie centre hospitalier universitaire Saint-Antoine, AP-HP, DHU i2B, Paris, France. Electronic address: catherine.beauvais@aphp.fr., Rodère M; Service de rhumatologie, centre hospitalier universitaire Gabriel-Montpied, Clermont-Ferrand, France., Pereira B; Département de biostatistique centre hospitalier universitaire Gabriel-Montpied, Clermont-Ferrand, France., Legoupil N; Service de rhumatologie, centre hospitalier universitaire Cochin, AP-HP, Paris, France., Piperno M; Service de rhumatologie, centre hospitalier universitaire Lyon-Sud, Lyon, France., Pallot Prades B; Service de rhumatologie, centre hospitalier universitaire régional, Saint Etienne, France., Castaing P; Service de rhumatologie, centre hospitalier régional universitaire, Bordeaux, France., Wendling D; Service de rhumatologie, service de rhumatologie, centre hospitalier régional universitaire de Besançon, EA 4266 EPILAB université Bourgogne Franche-Comté, Besançon, France., Grange L; Service de rhumatologie, centre hospitalier universitaire Grenoble Alpes, Echirolles, France., Costantino F; Service de rhumatologie, service de rhumatologie, hôpital universitaire Ambroise-Paré, AP-HP, université Versailles-Saint Quentin-en-Yvelines, Boulogne-Billancourt, France., Carton L; Laurence Carton, Association AFLAR, France., Soubrier M; Service de rhumatologie, centre hospitalier universitaire Gabriel-Montpied, Clermont-Ferrand, France., Coquerelle P; Service de rhumatologie, centre hospitalier, Béthune, France., Pham T; Service de rhumatologie, centre hospitalier universitaire Sainte-Marguerite, université Aix-Marseille, Lyon, France., Poivret D; Service de rhumatologie, centre hospitalier Metz, Thionville, France., Cohen JD; Service de rhumatologie, hôpital universitaire Montpellier, université de Montpellier, Lyon, France., Tavares I; Service de rééducation, hôpital universitaire, Montpellier, France., Nataf H; Service de médecine, hôpital, Mantes-la-Jolie, France., Pouplin S; Service de rhumatologie, hôpital universitaire, Rouen, France., Sordet C; Service de rhumatologie, hôpitaux universitaires, Strasbourg, France., Gossec L; Sorbonne université, Institut Pierre-Louis d'Épidémiologie et de santé publique (iPLESP), UMR S1136, Paris, France; Service de rhumatologie, centre hospitalier universitaire Pitié Salpêtrière, AP-HP, Paris, France.
Jazyk: angličtina
Zdroj: Joint bone spine [Joint Bone Spine] 2019 Nov; Vol. 86 (6), pp. 747-752. Date of Electronic Publication: 2019 Jun 19.
DOI: 10.1016/j.jbspin.2019.06.006
Abstrakt: Objective: Information and education are recommended for patients with inflammatory arthritis including rheumatoid arthritis (RA) and spondyloarthritis (SpA). However, there is no consensus on which knowledge is essential to enhance patients' self-management. The aim of this study was to determine such knowledge.
Methods: Based on published knowledge questionnaires (KQs) collected by a systematic literature review, a list of items was elaborated, classified in domains and sub domains. A Delphi process was performed with rheumatologists, healthcare professionals and patients in 2014-2015, selecting the items considered useful.
Results: Three published KQs were analysed: 2 for RA; 1 for SpA and 5 unpublished KQs were collected. In the KQs, 90 knowledge items were mentioned for RA and 67 for SpA. The 1 st Delphi round enlarged the list to 322 items for RA and 265 items for SpA. The second round selected 69 and 59 knowledge items for RA and SpA respectively, of which 36 (52%) and 34 (57%) were not present or modified from the published KQs. Key domains included treatment strategies, managing cDMARDs and bDMARDs, managing symptomatic medications. Knowledge on non-pharmacological treatment concerned pain and fatigue, physical activity, adaptative skills to personal and professional environment, patient-HP communication and shared decision-making.
Conclusion: The present study provides a corpus of knowledge considered essential for patients in the self-management of their arthritis. The selection of many items reflects recent emphasis on professional recommendations and the patients' perspective. Future work should lead to the development of new updated KQs for patients with inflammatory arthritis.
(Copyright © 2019. Published by Elsevier Masson SAS.)
Databáze: MEDLINE
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