Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT.

Autor:	Brady KJS; Department of Health Law, Policy, and Management, Boston University School of Public Health, Massachusetts.; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Surgery, Massachusetts General Hospital., Grant GG; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Surgery, Massachusetts General Hospital., Stoddard FJ; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Psychiatry, Massachusetts General Hospital, Boston.; Harvard Medical School, Boston, Massachusetts., Meyer WJ; Department of Psychiatry and Behavioral Sciences, The University of Texas Medical Branch, Galveston.; Shriners Hospitals for Children-Galveston, Texas., Romanowski KS; Shriners Hospital for Children-Northern California, Sacramento.; Department of Surgery, Division of Burn Surgery, University of California Davis School of Medicine, Sacramento., Chang PH; Weill Cornell Medicine, New York., Painting LE; Shriners Hospital for Children-Northern California, Sacramento., Fowler LA; Shriners Hospital for Children-Cincinnati, Ohio., Nelson JK; Shriners Hospital for Children-Cincinnati, Ohio., Rivas P; Shriners Hospitals for Children-Galveston, Texas., Epperson K; Shriners Hospitals for Children-Galveston, Texas., Sheridan RL; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Surgery, Massachusetts General Hospital.; Harvard Medical School, Boston, Massachusetts., Murphy M; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Psychiatry, Massachusetts General Hospital, Boston.; Harvard Medical School, Boston, Massachusetts., O'Donnell EH; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Psychiatry, Massachusetts General Hospital, Boston.; Harvard Medical School, Boston, Massachusetts., Ceranoglu TA; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Psychiatry, Massachusetts General Hospital, Boston.; Harvard Medical School, Boston, Massachusetts., Sheldrick RC; Department of Health Law, Policy, and Management, Boston University School of Public Health, Massachusetts., Ni P; Department of Health Law, Policy, and Management, Boston University School of Public Health, Massachusetts., Slavin MD; Department of Health Law, Policy, and Management, Boston University School of Public Health, Massachusetts., Warner P; Shriners Hospital for Children-Cincinnati, Ohio.; Department of Surgery, University of Cincinnati, Ohio., Palmieri TL; Shriners Hospital for Children-Northern California, Sacramento.; Department of Surgery, Division of Burn Surgery, University of California Davis School of Medicine, Sacramento., Schneider JC; Shriners Hospitals for Children-Boston, Massachusetts.; Harvard Medical School, Boston, Massachusetts.; Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital, Charlestown, Massachusetts., Kazis LE; Department of Health Law, Policy, and Management, Boston University School of Public Health, Massachusetts., Ryan CM; Shriners Hospitals for Children-Boston, Massachusetts.; Department of Surgery, Massachusetts General Hospital.; Harvard Medical School, Boston, Massachusetts.
Jazyk:	angličtina
Zdroj:	Journal of burn care & research : official publication of the American Burn Association [J Burn Care Res] 2020 Jan 30; Vol. 41 (1), pp. 84-94.
DOI:	10.1093/jbcr/irz110
Abstrakt:	Due to the rapid developmental growth in preschool-aged children, more precise measurement of the effects of burns on child health outcomes is needed. Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0-5), we developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1-5 years). We developed a working conceptual framework based on the BOQ0-5, the National Research Council and Institute of Medicine's Model of Child Health, and the World Health Organization's International Classification of Functioning, Disability, and Health for Children and Youth. We iteratively refined our framework based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. We reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from our analysis: symptoms, functioning, and family. The symptoms domain describes parents' perceptions of their child's pain, skin-related discomfort, and fatigue. The functioning domain describes children's physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes. (© American Burn Association 2019. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.)
Databáze:	MEDLINE
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