Concept to gain trust for a German personal health record system using public cloud and FHIR.

Autor: Ploner N; Department of Medical Informatics, Biometrics and Epidemiology, Unit for Medical Informatics, Friedrich-Alexander-University Erlangen-Nürnberg (FAU), Wetterkreuz 13, 91058 Erlangen, Germany. Electronic address: nico.ploner@fau.de., Neurath MF; Department of Medicine 1, Division of Gastroenterology, Pneumology and Endocrinology, Ludwig Demling Endoscopy Center of Excellence, Friedrich-Alexander-University Erlangen-Nürnberg (FAU), Ulmenweg 18, 91054 Erlangen, Germany. Electronic address: markus.neurath@uk-erlangen.de., Schoenthaler M; Department of Urology, Medical Center - University of Freiburg, Faculty of Medicine, University of Freiburg, Hugstetter Str. 55, 79106 Freiburg, Germany. Electronic address: martin.schoenthaler@uniklinik-freiburg.de., Zielke A; Diakonie-Klinikum Stuttgart, Klinik für Endokrine Chirurgie, Endokrines Zentrum Stuttgart, Rosenbergstrasse 38, 70176 Stuttgart, Germany. Electronic address: andreas.zielke@diak-stuttgart.de., Prokosch HU; Department of Medical Informatics, Biometrics and Epidemiology, Unit for Medical Informatics, Friedrich-Alexander-University Erlangen-Nürnberg (FAU), Wetterkreuz 13, 91058 Erlangen, Germany. Electronic address: hans-ulrich.prokosch@fau.de.
Jazyk: angličtina
Zdroj: Journal of biomedical informatics [J Biomed Inform] 2019 Jul; Vol. 95, pp. 103212. Date of Electronic Publication: 2019 May 18.
DOI: 10.1016/j.jbi.2019.103212
Abstrakt: Objective: Although a national Personal Health Record (PHR) infrastructure was supposed to have been introduced in Germany by law in 2006 and different providers are entering the market, no system has yet been widely adopted in Germany. There is also little information available on how current technical advancements affect German patients' and physicians' trust in PHR systems.
Methods: Supporting scenarios obtained from clinicians, this study proposes a concept for a German PHR system using a public cloud infrastructure, smartphone access and focusing on trust, privacy, and interoperability. In advance to an eventual implementation, a multi-center questionnaire study has been conducted to predict patients' and physicians' intention to use that system and evaluate their trust in different providers of such a system.
Results: Our results show that both patients and physicians are highly likely to use the PHR based on the present concept. Trust in healthcare providers exceeds trust in other institutions like private companies, health insurance companies, or even governmental institutions when offering such a PHR system.
Conclusions: We recommend the implementation of this PHR system. To maximize patients' and physicians' trust in the system, it should be offered to patients by their healthcare provider. Further evaluation regarding its actual adoption and expected improvement in patient outcome based on the scenarios is advisable.
(Copyright © 2019 Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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