Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life.

Autor:	Edvardsson D; Umeå University, Umeå, Sweden.; La Trobe University, Victoria, Australia., Baxter R; Umeå University, Umeå, Sweden., Corneliusson L; Umeå University, Umeå, Sweden., Anderson RA; The University of North Carolina at Chapel Hill, NC, USA., Beeber A; The University of North Carolina at Chapel Hill, NC, USA., Boas PV; São Paulo State University (UNESP), Brazil., Corazzini K; Duke University, Durham, NC, USA., Gordon AL; University of Nottingham, Nottingham, UK., Hanratty B; Newcastle University, Newcastle, UK., Jacinto A; São Paulo State University (UNESP), Brazil., Lepore M; RTI International, Washington, DC, USA., Leung AYM; The Hong Kong Polytechnic University, Kowloon, Hong Kong., McGilton KS; Toronto Rehabilitation Institute-UHN, Ontario, Canada., Meyer J; City, University of London, UK., Schols JMGA; Maastricht University, Maastricht, The Netherlands., Schwartz L; American Health Care Association/National Center for Assisted Living, Washington, DC, USA., Shepherd V; Cardiff University, Cardiff, UK., Skoldunger A; Karolinska Institutet, Stockholm, Sweden., Thompson R; Duke University, Durham, NC, USA., Toles M; The University of North Carolina at Chapel Hill, NC, USA., Wachholz P; São Paulo State University (UNESP), Brazil., Wang J; Duke University, Durham, NC, USA., Wu B; New York University, New York City, USA., Zúñiga F; University of Basel, Basel, Switzerland.
Jazyk:	angličtina
Zdroj:	Gerontology & geriatric medicine [Gerontol Geriatr Med] 2019 May 08; Vol. 5, pp. 2333721419842672. Date of Electronic Publication: 2019 May 08 (Print Publication: 2019).
DOI:	10.1177/2333721419842672
Abstrakt:	To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models. Competing Interests: Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Databáze:	MEDLINE
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