Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.

Autor: Doria-Rose VP; Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, US., Greenlee RT; Marshfield Clinic Research Institute, Marshfield, WI, US., Buist DSM; Kaiser Permanente Washington Health Research Institute, Seattle, WA, US., Miglioretti DL; Kaiser Permanente Washington Health Research Institute, Seattle, WA, US.; University of California Davis School of Medicine, Davis, CA, US., Corley DA; Division of Research, Kaiser Permanente Northern California, Oakland, CA, US., Brown JS; Department of Population Medicine, Harvard Medical School, Boston, MA, US.; Harvard Pilgrim Health Care Institute, Boston, MA, US., Clancy HA; Division of Research, Kaiser Permanente Northern California, Oakland, CA, US., Tuzzio L; Kaiser Permanente Washington Health Research Institute, Seattle, WA, US., Moy LM; Division of Research, Kaiser Permanente Northern California, Oakland, CA, US., Hornbrook MC; Center for Health Research, Kaiser Permanente Northwest, Portland, OR, US.; Retired., Brown ML; Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, US.; Retired., Ritzwoller DP; Institute for Health Research, Kaiser Permanente Colorado, Aurora, CO, US., Kushi LH; Division of Research, Kaiser Permanente Northern California, Oakland, CA, US., Greene SM; Health Care Systems Research Network, Seattle, WA, US.
Jazyk: angličtina
Zdroj: EGEMS (Washington, DC) [EGEMS (Wash DC)] 2019 Mar 29; Vol. 7 (1), pp. 7. Date of Electronic Publication: 2019 Mar 29.
DOI: 10.5334/egems.273
Abstrakt: The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.
Competing Interests: The authors have no competing interests to declare.
Databáze: MEDLINE
Externí odkaz: