The experiences of suffering of end-stage renal failure patients in Malaysia: a thematic analysis.

Autor:	Beng TS; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia. pramudita_1@hotmail.com., Yun LA; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Yi LX; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Yan LH; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Peng NK; Unit of Renal Medicine, Department of Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Kun LS; Unit of Renal Medicine, Department of Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Zainuddin SI; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Chin LE; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia., Loong LC; Unit of Palliative Medicine, Faculty of Medicine, University of Malaya Medical Centre, Kuala Lumpur, Malaysia.
Jazyk:	angličtina
Zdroj:	Annals of palliative medicine [Ann Palliat Med] 2019 Sep; Vol. 8 (4), pp. 401-410. Date of Electronic Publication: 2019 Apr 01.
DOI:	10.21037/apm.2019.03.04
Abstrakt:	Background: The population of end-stage renal failure (ESRF) receiving dialysis treatment is increasing worldwide. For most patients with ESRF, dialysis can extend their life. However, treatment can be demanding and time-consuming. Despite dialysis treatment, many patients continue to experience various sufferings. Methods: A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering of ESRF patients on maintenance dialysis in Malaysia. The results were thematically analyzed. Results: Nineteen ESRF patients were interviewed. The themes and subthemes were: (I) physical suffering-physical symptoms and functional limitations, (II) psychological suffering-the emotions and thoughts of suffering, (III) social suffering-healthcare-related suffering and burdening of others and (IV) spiritual suffering-the queries of suffering. Conclusions: These findings may help healthcare professionals to fill in the gaps in the delivery of best renal palliative care.
Databáze:	MEDLINE
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