Guidance to 2018 good practice: ARIA digitally-enabled, integrated, person-centred care for rhinitis and asthma.

Autor: Bousquet J; 1MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5, France.; INSERM U 1168, VIMA: Ageing and Chronic Diseases Epidemiological and Public Health Approaches, Villejuif, Université Versailles St-Quentin-en-Yvelines, UMR-S 1168, Montigny Le Bretonneux, France.; Euforea, Brussels, Belgium.; 4Humboldt-Universität zu Berlin, Berlin Institute of Health, Comprehensive Allergy Center, Department of Dermatology and Allergy, Charité, Universitätsmedizin Berlin, Berlin, Germany., Bedbrook A; 1MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5, France., Czarlewski W; Medical Consulting Czarlewski, Levallois, France., Onorato GL; 1MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5, France., Arnavielhe S; KYomed INNOV, Montpellier, France., Laune D; KYomed INNOV, Montpellier, France., Mathieu-Dupas E; KYomed INNOV, Montpellier, France., Fonseca J; Center for Research in Health Technology and Information Systems, Faculdade de Medicina da Universidade do Porto, Medida, Lda Porto, Portugal., Costa E; 8UCIBIO, REQUINTE, Faculty of Pharmacy and Competence Center on Active and Healthy Ageing, University of Porto (Porto4Ageing), Porto, Portugal., Lourenço O; 9Faculty of Health Sciences and CICS - UBI, Health Sciences Research Centre, University of Beira Interior, Covilhã, Portugal., Morais-Almeida M; Allergy Center, CUF Descobertas Hospital, Lisbon, Portugal., Todo-Bom A; 11Imunoalergologia, Centro Hospitalar Universitário de Coimbra and Faculty of Medicine, University of Coimbra, Coimbra, Portugal., Illario M; Division for Health Innovation, Campania Region and Federico II University Hospital Naples (R&D and DISMET), Naples, Italy., Menditto E; 13CIRFF, Federico II University, Naples, Italy., Canonica GW; 14Personalized Medicine Clinic Asthma and Allergy, Humanitas Research Hospital, Humanitas University, Rozzano, Milan, Italy., Cecchi L; SOS Allergology and Clinical Immunology, USL Toscana Centro, Prato, Italy., Monti R; 16Department of Medical Sciences, Allergy and Clinical Immunology Unit, University of Torino & Mauriziano Hospital, Turin, Italy., Napoli L; Consortium of Pharmacies and Services COSAFER, Salerno, Italy., Ventura MT; 18Unit of Geriatric Immunoallergology, University of Bari Medical School, Bari, Italy., De Feo G; 19Department of Medicine, Surgery and Dentistry 'Scuola Medica Salernitana', University of Salerno, Salerno, Italy., Fokkens WJ; Department of Otorhinolaryngology, Amsterdam University Medical Centre (AMC), Amsterdam, The Netherlands., Chavannes NH; 21Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands., Reitsma S; Department of Otorhinolaryngology, Amsterdam University Medical Centre (AMC), Amsterdam, The Netherlands., Cruz AA; 22ProAR - Nucleo de Excelencia em Asma, Federal University of Bahia, Vitória da Conquista, Brazil., da Silva J; WHO GARD Planning Group, Salvador, Brazil., Serpa FS; 24Department of Internal Medicine and Allergic Clinic of Professor Polydoro Ernani de Sao, Thiago University Hospital, Federal University of Santa Catarina (UFSC), Florianópolis, Brazil.; 25Asthma Reference Center, Escola Superior de Ciencias da Santa Casa de Misericordia de Vitoria, Vitória, Esperito Santo Brazil., Larenas-Linnemann D; Center of Excellence in Asthma and Allergy, Médica Sur Clinical Foundation and Hospital, Mexico City, Mexico., Fuentes Perez JM; 27Hospital General Regional 1 'Dr Carlos Mc Gregor Sanchez Navarro' IMSS, Mexico City, Mexico., Huerta-Villalobos YR; 27Hospital General Regional 1 'Dr Carlos Mc Gregor Sanchez Navarro' IMSS, Mexico City, Mexico., Rivero-Yeverino D; Allergist, Mexico City, Mexico., Rodriguez-Zagal E; Allergist, Mexico City, Mexico., Valiulis A; 29Clinic of Children's Diseases, and Institute of Health Sciences Department of Public Health, Vilnius University Institute of Clinical Medicine, Vilnius, Lithuania.; European Academy of Paediatrics (EAP/UEMS-SP), Brussels, Belgium., Dubakiene R; 31Clinic of Infectious, Chest Diseases, Dermatology and Allergology, Vilnius University, Vilnius, Lithuania., Emuzyte R; 32Clinic of Children's Diseases, Faculty of Medicine, Vilnius University, Vilnius, Lithuania., Kvedariene V; 33Faculty of Medicine, Vilnius University, Vilnius, Lithuania., Annesi-Maesano I; 34Epidemiology of Allergic and Respiratory Diseases, Department Institute Pierre Louis of Epidemiology and Public Health, INSERM, Sorbonne Université, Medical School Saint Antoine, Paris, France., Blain H; 35Department of Geriatrics, Montpellier University Hospital, Montpellier, France.; 36EA 2991, Euromov, University Montpellier, Montpellier, France., Bonniaud P; 37CHU Dijon, Dijon, France., Bosse I; Allergist, La Rochelle, France., Dauvilliers Y; 39Sleep Unit, Department of Neurology, Hôpital Gui-de-Chauliac Montpellier, Montpellier, France.; Inserm U1061, Montpellier, France., Devillier P; 41UPRES EA220, Pôle des Maladies des Voies Respiratoires, Hôpital Foch, Université Paris-Saclay, Suresnes, France., Fontaine JF; Allergist, Reims, France., Pépin JL; 43Laboratoire HP2, Grenoble, INSERM, U1042, Université Grenoble Alpes, Grenoble, France.; 44CHU de Grenoble, Grenoble, France., Pham-Thi N; 45Allergy Department, Pasteur Institute, Paris, France., Portejoie F; 1MACVIA-France, Fondation Partenariale FMC VIA-LR, CHU Arnaud de Villeneuve, 371 Avenue du Doyen Gaston Giraud, 34295 Montpellier Cedex 5, France., Picard R; Conseil Général de l'Economie Ministère de l'Economie, de l'Industrie et du Numérique, Paris, France., Roche N; 47Pneumologie et Soins Intensifs Respiratoires, Hôpitaux Universitaires Paris, Centre Hôpital Cochin, Paris, France., Rolland C; Association Asthme et Allergie, Paris, France., Schmidt-Grendelmeier P; 49Allergy Unit, Department of Dermatology, University Hospital of Zurich, Zurich, Switzerland., Kuna P; 50Division of Internal Medicine, Asthma and Allergy, Barlicki University Hospital, Medical University of Lodz, Lodz, Poland., Samolinski B; 51Department of Prevention of Envinronmental Hazards and Allergology, Medical University of Warsaw, Warsaw, Poland., Anto JM; ISGlobAL, Centre for Research in Environmental Epidemiology (CREAL), Barcelona, Spain.; 53IMIM (Hospital del Mar Research Institute), Barcelona, Spain.; 54CIBER Epidemiología y Salud Pública (CIBERESP), Barcelona, Spain.; 55Universitat Pompeu Fabra (UPF), Barcelona, Spain., Cardona V; 56Allergy Section, Department of Internal Medicine, Hospital Vall 'dHebron & ARADyAL Research Network, Barcelona, Spain., Mullol J; 57Rhinology Unit and Smell Clinic, ENT Department, Hospital Clínic, University of Barcelona, Barcelona, Spain.; 58Clinical and Experimental Respiratory Immunoallergy, IDIBAPS, CIBERES, University of Barcelona, Barcelona, Spain., Pinnock H; 59Asthma UK Centre for Applied Research, The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK., Ryan D; 60Honorary Clinical Research Fellow, Allergy and Respiratory Research Group, Usher Institute of Population Health Sciences and Informatics, Medical School, University of Edinburgh, Edinburgh, UK., Sheikh A; 61The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK., Walker S; 62Asthma UK, Mansell Street, London, UK., Williams S; International Primary Care Respiratory Group IPCRG, Aberdeen, Scotland, UK., Becker S; 64Department of Otolaryngology, Head and Neck Surgery, University of Mainz, Mainz, Germany., Klimek L; Center for Rhinology and Allergology, Wiesbaden, Germany., Pfaar O; 66Department of Otorhinolaryngology, Head and Neck Surgery, Section of Rhinology and Allergy, University Hospital Marburg, Phillipps-Universität Marburg, Marburg, Germany., Bergmann KC; 67Corporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin Berlin, Berlin, Germany.; Berlin Institute of Health, Comprehensive Allergy-Centre, Department of Dermatology and Allergy, Member of GA2LEN, Berlin, Germany., Mösges R; 69Institute of Medical Statistics, and Computational Biology, Medical Faculty, University of Cologne, Cologne, Germany.; CRI-Clinical Research International-Ltd, Hamburg, Germany., Zuberbier T; 67Corporate Member of Freie Universität Berlin, Humboldt-Uniersität zu Berlin, Charité - Universitätsmedizin Berlin, Berlin, Germany.; Berlin Institute of Health, Comprehensive Allergy-Centre, Department of Dermatology and Allergy, Member of GA2LEN, Berlin, Germany., Roller-Wirnsberger RE; 71Department of Internal Medicine, Medical University of Graz, Graz, Austria., Tomazic PV; 72Department of ENT, Medical University of Graz, Graz, Austria., Haahtela T; 73Skin and Allergy Hospital, Helsinki University Hospital, University of Helsinki, Helsinki, Finland., Salimäki J; Association of Finnish Pharmacies, Helsinki, Finland., Toppila-Salmi S; 73Skin and Allergy Hospital, Helsinki University Hospital, University of Helsinki, Helsinki, Finland., Valovirta E; 75Department of Lung Diseases and Clinical Immunology, Terveystalo Allergy Clinic, University of Turku, Turku, Finland., Vasankari T; FILHA, Finnish Lung Association, Helsinki, Finland., Gemicioğlu B; 77Department of Pulmonary Diseases, Cerrahpasa Faculty of Medicine, Istanbul University-Cerrahpasa, Istambul, Turkey., Yorgancioglu A; 78Department of Pulmonary Diseases, Faculty of Medicine, Celal Bayar University, Manisa, Turkey., Papadopoulos NG; 79Division of Infection, Immunity and Respiratory Medicine, Royal Manchester Children's Hospital, University of Manchester, Manchester, UK.; 80Allergy Department, 2nd Pediatric Clinic, Athens General Children's Hospital 'P&A Kyriakou', University of Athens, Athens, Greece., Prokopakis EP; 81Department of Otorhinolaryngology, University of Crete School of Medicine, Heraklion, Greece., Tsiligianni IG; 61The Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK.; 82Health Planning Unit, Department of Social Medicine, Faculty of Medicine, University of Crete, Crete, Greece., Bosnic-Anticevich S; 83University of Sydney and Woolcock Emphysema Centre and Local Health District, Woolcock Institute of Medical Research, Glebe, NSW Australia., O'Hehir R; 84Department of Allergy, Immunology and Respiratory Medicine, Alfred Hospital and Central Clinical School, Monash University, Melbourne, VIC Australia.; 85Department of Immunology, Monash University, Melbourne, VIC Australia., Ivancevich JC; Servicio de Alergia e Immunologia, Clinica Santa Isabel, Buenos Aires, Argentina., Neffen H; Director of Center of Allergy, Immunology and Respiratory Diseases, Santa Fe, Argentina Center for Allergy and Immunology, Santa Fe, Argentina., Zernotti ME; 88Universidad Católica de Córdoba, Córdoba, Argentina., Kull I; 89Department of Clinical Science and Education, Södersjukhuset, Karolinska Institutet, Stockholm, Sweden.; 90Sachs' Children and Youth Hospital, Södersjukhuset, Stockholm and Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden., Melén E; 90Sachs' Children and Youth Hospital, Södersjukhuset, Stockholm and Institute of Environmental Medicine, Karolinska Institutet, Stockholm, Sweden., Wickman M; 91Centre for Clinical Research Sörmland, Uppsala University, Eskilstuna, Sweden., Bachert C; 92Upper Airways Research Laboratory, ENT Dept, Ghent University Hospital, Ghent, Belgium., Hellings PW; Euforea, Brussels, Belgium.; 93Department of Otorhinolaryngology, Univ Hospitals Leuven, Louvain, Belgium.; 94Academic Medical Center, Univ of Amsterdam, Amsterdam, The Netherlands., Brusselle G; 95Department of Respiratory Medicine, Ghent University Hospital, Ghent, Belgium., Palkonen S; 96EFA European Federation of Allergy and Airways Diseases Patients' Associations, Brussels, Belgium., Bindslev-Jensen C; Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark., Eller E; Department of Dermatology and Allergy Centre, Odense University Hospital, Odense Research Center for Anaphylaxis (ORCA), Odense, Denmark., Waserman S; 98Department of Medicine, Clinical Immunology and Allergy, McMaster University, Hamilton, ON Canada., Boulet LP; 99Quebec Heart and Lung Institute, Laval University, Québec City, QC Canada., Bouchard J; Clinical Medecine, Laval's University, Quebec City, Canada., Chu DK; Medecine Department, Hôpital de la Malbaie, Quebec, Canada., Schünemann HJ; Medecine Department, Hôpital de la Malbaie, Quebec, Canada., Sova M; 102Department of Health Research Methods, Evidence and Impact, Division of Immunology and Allergy, McMaster University, Hamilton, ON Canada., De Vries G; 103Department of Respiratory Medicine, University Hospital Olomouc, Olomouc, Czech Republic.; Peercode BV, Geldermalsen, The Netherlands., van Eerd M; 103Department of Respiratory Medicine, University Hospital Olomouc, Olomouc, Czech Republic.; Peercode BV, Geldermalsen, The Netherlands., Agache I; 105Faculty of Medicine, Transylvania University, Brasov, Romania., Ansotegui IJ; Department of Allergy and Immunology, Hospital Quirón Bizkaia, Erandio, Spain., Bewick M; iQ4U Consultants Ltd, London, UK., Casale T; 108Division of Allergy/Immunology, University of South Florida, Tampa, USA., Dykewick M; 109Section of Allergy and Immunology, Saint Louis University School of Medicine, Saint Louis, MO USA., Ebisawa M; 110Clinical Reserch Center for Allergy and Rheumatology, Sagamihara National Hospital, Sagamihara, Japan., Murray R; Medical Communications Consultant, MedScript Ltd (Ireland & New Zealand), Dundalk, Ireland.; Honorary Research Fellow, OPC, Cambridge, UK., Naclerio R; 113Johns Hopkins School of Medicine, Baltimore, MD USA., Okamoto Y; 114Department of Otorhinolaryngology, Chiba University Hospital, Chiba, Japan., Wallace DV; 115Nova Southeastern University, Fort Lauderdale, FL USA.
Jazyk: angličtina
Zdroj: Clinical and translational allergy [Clin Transl Allergy] 2019 Mar 11; Vol. 9, pp. 16. Date of Electronic Publication: 2019 Mar 11 (Print Publication: 2019).
DOI: 10.1186/s13601-019-0252-0
Abstrakt: Aims: Mobile Airways Sentinel NetworK (MASK) belongs to the Fondation Partenariale MACVIA-LR of Montpellier, France and aims to provide an active and healthy life to rhinitis sufferers and to those with asthma multimorbidity across the life cycle, whatever their gender or socio-economic status, in order to reduce health and social inequities incurred by the disease and to improve the digital transformation of health and care. The ultimate goal is to change the management strategy in chronic diseases.
Methods: MASK implements ICT technologies for individualized and predictive medicine to develop novel care pathways by a multi-disciplinary group centred around the patients.
Stakeholders: Include patients, health care professionals (pharmacists and physicians), authorities, patient's associations, private and public sectors.
Results: MASK is deployed in 23 countries and 17 languages. 26,000 users have registered.
Eu Grants 2018: MASK is participating in EU projects (POLLAR: impact of air POLLution in Asthma and Rhinitis, EIT Health, DigitalHealthEurope, Euriphi and Vigour).
Lessons Learnt: (i) Adherence to treatment is the major problem of allergic disease, (ii) Self-management strategies should be considerably expanded (behavioural), (iii) Change management is essential in allergic diseases, (iv) Education strategies should be reconsidered using a patient-centred approach and (v) Lessons learnt for allergic diseases can be expanded to chronic diseases.
Databáze: MEDLINE
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