Using the diffusion of innovations model to guide participant engagement in the genomics era.

Autor: Lewis KL; Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, Maryland., Facio FM; Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, Maryland., Berrios CD; Center for Pediatric Genomic Medicine, Children's Mercy Kansas City, Kansas City, Missouri.; School of Medicine, University of Missouri Kansas City, Kansas City, Missouri.
Jazyk: angličtina
Zdroj: Journal of genetic counseling [J Genet Couns] 2019 Apr; Vol. 28 (2), pp. 419-427. Date of Electronic Publication: 2019 Jan 17.
DOI: 10.1002/jgc4.1090
Abstrakt: Exome and genome sequencing (EGS) are increasingly the genetic testing modalities of choice among researchers owing to their ready availability, low cost, and large data output. Recruitment of larger, more diverse cohorts into long-term studies with extensive data collection is fundamental to the success of EGS research and to the widespread benefit of genomic medicine to various populations. Effective engagement will be critical to meeting this demand. The Diffusion of Innovation (DOI) model provides a framework for how new technologies are adopted in communities, including antecedents of an individual's decision to adopt the technology, how the technology's attributes influence its acceptability, the predictors of sustained use of that technology, and its diffusion through society. We apply the DOI model to frame participant engagement in EGS research and to guide the proposal of potential strategies that aim to overcome forecasted challenges. Finally, we suggest a variety of ways genetic counselors can apply their skills and training to the development and implementation of these strategies.
(© Published 2019. This article is a U.S. Government work and is in the public domain in the USA.)
Databáze: MEDLINE
Externí odkaz: