Provisional best practices guidelines for the evaluation of bulbar dysfunction in amyotrophic lateral sclerosis.

Autor: Pattee GL; Neurology Associates P.C, Lincoln, NE, U.S.A., Plowman EK; Department of Speech, Language and Hearing Sciences, University of Florida, Gainesville, FL, U.S.A., Focht Garand KL; Department of Speech Pathology and Audiology, University of South Alabama, Mobile, AL, U.S.A., Costello J; Speech and Feeding Disorders Lab, MGH Institute of Health Professions, Charlestown, MA, U.S.A., ALS Augmentative Communication Program, Boston Children's Hospital, Boston, MA, U.S.A., Brooks BR; Carolinas Medical Center, Charlotte, NC, U.S.A., Berry JD; MGH Department of Neurology, Boston, MA, U.S.A., Smith RA; Center for Neurologic Study, San Diego, CA, U.S.A., Atassi N; MGH Department of Neurology, Boston, MA, U.S.A., Chapin JL; Department of Speech, Language and Hearing Sciences, University of Florida, Gainesville, FL, U.S.A., Yunusova Y; Department of Speech-Language Pathology, University of Toronto, Toronto, ON, CANADA., McIlduff CE; Beth Israel Deaconess Medical Center, Boston, MA, U.S.A., Young E; State University of New York, Department of Neurology, Syracuse, NY, U.S.A., Macklin EA; MGH Biostatistics Center, Boston, MA, U.S.A., Locatelli ER; Holy Cross Hospital, Department of Neurology, Fort Lauderdale, FL, U.S.A., Silani V; Istituto Auxologico Italiano, IRCCS, Department of Neurology and Laboratory of Neuroscience, Department of Pathophysiology and Transplantation, 'Dino Ferrari' Center, Università degli studi di Milano, Milan 20122, Italy., Heitzman D; Texas Neurology, P.A, Dallas, TX, U.S.A., Wymer J; University of Florida, Rehabilitation Science, Gainesville, FL, U.S.A., Goutman SA; University of Michigan, Department of Neurology, Ann Arbor, MI, U.S.A., Gelinas DF; UNC Health Care, Chapel Hill, NC, U.S.A., Perry B; Speech and Feeding Disorders Lab, MGH Institute of Health Professions, Charlestown, MA, U.S.A., ALS Augmentative Communication Program, Boston Children's Hospital, Boston, MA, U.S.A., Nalipinski P; MGH Speech Language Pathology, Boston, MA, U.S.A., Stipancic K; Speech and Feeding Disorders Lab, MGH Institute of Health Professions, Charlestown, MA, U.S.A., ALS Augmentative Communication Program, Boston Children's Hospital, Boston, MA, U.S.A., O'Brien M; Speech and Feeding Disorders Lab, MGH Institute of Health Professions, Charlestown, MA, U.S.A., ALS Augmentative Communication Program, Boston Children's Hospital, Boston, MA, U.S.A., Sullivan SL; MGH Speech Language Pathology, Boston, MA, U.S.A., Pioro EP; Cleveland Clinic, Department of Neurology, Cleveland, OH, U.S.A., Gargiulo G; National Scientific and Technical Research Council, Buenos Aires, Argentina., Green JR; Speech and Feeding Disorders Lab, MGH Institute of Health Professions, Charlestown, MA, U.S.A., ALS Augmentative Communication Program, Boston Children's Hospital, Boston, MA, U.S.A.
Jazyk: angličtina
Zdroj: Muscle & nerve [Muscle Nerve] 2019 May; Vol. 59 (5), pp. 531-536. Date of Electronic Publication: 2019 Jan 22.
DOI: 10.1002/mus.26408
Abstrakt: Introduction: Universally established comprehensive clinical bulbar scales objectively assessing disease progression in amyotrophic lateral sclerosis (ALS) are currently lacking. The goal of this working group project is to design a best practice set of provisional bulbar ALS guidelines, available for immediate implementation within all ALS clinics.
Methods: ALS specialists across multiple related disciplines participated in a series of clinical bulbar symposia, intending to identify and summarize the currently accepted best practices for the assessment and management of bulbar dysfunction in ALS Results: Summary group recommendations for individual speech, Augmentative and Alternative Communication (AAC), and swallowing sections were achieved, focusing on the optimal proposed level of care within each domain.
Discussion: We have identified specific clinical recommendations for each of the 3 domains of bulbar functioning, available for incorporation within all ALS clinics. Future directions will be to establish a formal set of bulbar guidelines through a methodological and evidence-based approach. Muscle Nerve 59:531-531, 2019.
(© 2019 Wiley Periodicals, Inc.)
Databáze: MEDLINE
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