Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy.
| Autor: | Case LE; Doctor of Physical Therapy Division, Department of Orthopedics, School of Medicine, Duke University, Durham, North Carolina; laura.case@duke.edu., Apkon SD; Department of Rehabilitation Medicine, Seattle Children's Hospital, Seattle, Washington., Eagle M; Newcastle University, Newcastle upon Tyne, United Kingdom., Gulyas A; Western Maryland Hospital System, Hagerstown, Maryland., Juel L; Duke University Health System and Lenox Baker Children's Hospital, Durham, North Carolina., Matthews D; Children's Hospital Colorado, Aurora, Colorado; and., Newton RA; Duke University Health System, Durham, North Carolina., Posselt HF; Muscular Dystrophy Association of Queensland, Nundah, Australia. |
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| Jazyk: | angličtina |
| Zdroj: | Pediatrics [Pediatrics] 2018 Oct; Vol. 142 (Suppl 2), pp. S17-S33. |
| DOI: | 10.1542/peds.2018-0333D |
| Abstrakt: | Steadily improving management of Duchenne muscular dystrophy (DMD) continues to lead to improved physical and functional status, allowing increasingly successful transitions to independence and self-actualization in adulthood. Rehabilitation principles remain key to overall management for individuals with DMD with increasing options for ever more successful management, reflecting a changing natural history based on the use of glucocorticoids, more consistent comprehensive care, and the emergence of disease-modifying treatments. Advances and expansion in assessment, cardiorespiratory management, preventive management of contracture and deformity, assistive technology, "smart" technology, and robotics with increased emphasis on function, participation, self-advocacy, and independence in decision-making should allow individuals with DMD to experience childhood and transition to adulthood with support that allows for increasing success in the achievement of individual goals and fulfillment across the life span. Competing Interests: POTENTIAL CONFLICT OF INTEREST: The authors have indicated they have no potential conflicts of interest to disclose. (Copyright © 2018 by the American Academy of Pediatrics.) |
| Databáze: | MEDLINE |
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