Development of a Caregiver-Reported Experience Measure for Pediatric Hospital-to-Home Transitions.

Autor: Desai AD; Department of Pediatrics, University of Washington, Seattle Children's Research Institute, Seattle, WA., Jacob-Files EA; Seattle Children's Research Institute, Seattle, WA., Lowry SJ; Seattle Children's Research Institute, Seattle, WA., Opel DJ; Department of Pediatrics, University of Washington, Seattle Children's Research Institute, Seattle, WA., Mangione-Smith R; Department of Pediatrics, University of Washington, Seattle Children's Research Institute, Seattle, WA., Britto MT; Department of Pediatrics, University of Cincinnati, Cincinnati Children's Hospital Medical Center, Cincinnati, OH., Howard WJ; Seattle Children's Research Institute, Seattle, WA.
Jazyk: angličtina
Zdroj: Health services research [Health Serv Res] 2018 Aug; Vol. 53 Suppl 1, pp. 3084-3106. Date of Electronic Publication: 2018 May 08.
DOI: 10.1111/1475-6773.12864
Abstrakt: Objective: To develop and test a caregiver-reported experience measure for pediatric hospital-to-home transitions.
Data Sources/study Setting: Primary data were collected between 07/2014 and 05/2015 from caregivers within 2-8 weeks of their child's discharge from a tertiary care children's hospital.
Study Design/data Collection: We used a step-wise approach to developing the measure that included drafting de novo survey items based on caregiver interviews (n = 18), pretesting items using cognitive interviews (n = 18), and pilot testing revised items among an independent sample of caregivers (n = 500). Item reduction statistics and confirmatory factor analysis (CFA) were performed on a test sample of the pilot data to refine the measure, followed by CFA on the validation sample to test the final measure model fit.
Principal Findings: Of 46 initial survey items, 19 were removed after pretesting and 19 were removed after conducting item statistics and CFA. This resulted in an eight-item measure with two domains: transition preparation (four items) and transition support (four items). Survey items assess the quality of discharge instructions, access to needed support and resources, care coordination, and follow-up care. Practical fit indices demonstrated an acceptable model fit: χ 2  = 28.3 (df = 19); root-mean-square error of approximation = 0.04; comparative fit index = 0.99; and Tucker-Lewis index = 0.98.
Conclusions: An eight-item caregiver-reported experience measure to evaluate hospital-to-home transition outcomes in pediatric populations demonstrated acceptable content validity and psychometric properties.
(© Health Research and Educational Trust.)
Databáze: MEDLINE
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