Patients' knowledge and attitudes regarding living with implantable electronic devices: results of a multicentre, multinational patient survey conducted by the European Heart Rhythm Association.

Autor:	Haugaa KH; Department of Cardiology and Institute for Surgical Research, Center for Cardiological Innovation, Oslo University Hospital, Rikshospitalet, Oslo, Norway.; Institute for Clinical Medicine, University of Oslo, Oslo, Norway., Potpara TS; School of Medicine, University of Belgrade, Belgrade, Serbia.; Cardiology Clinic, Clinical Centre of Serbia, Serbia., Boveda S; Division of Cardiology, Cardiac Arrhythmias Management Department, Clinique Pasteur, Toulouse, France., Deharo JC; Service de Cardiologie-Hôpital Timone Adultes, 264 Rue Saint Pierre, Marseille, 13385 Cedex 05, France., Chen J; Department of Heart Disease, Haukeland University Hospital, 5021 Bergen, Norway.; Department of Clinical Science, University of Bergen, 5021 Bergen, Norway., Dobreanu D; Cardiology Clinic, Emergency Institute for Cardiovascular Diseases and Transplant, University of Medicine and Pharmacy, Tirgu Mures, Romania., Fumagalli S; Intensive Care Unit, Geriatric Cardiology and Medicine Division, Experimental and Clinical Medicine Department, University of Florence and AOU Careggi, Florence, Italy., Lenarczyk R; Department of Cardiology, Congenital Heart Disease and Electrotherapy, Silesian Medical University, Silesian Centre for Heart Diseases, Zabrze, Poland., Hernandez Madrid A; Cardiology Department, Ramón y Cajal Hospital, Alcala University, 28034 Madrid, Spain., Larsen TB; Department of Cardiology, Thrombosis & Drug Research Unit, Aalborg University Hospital, Aalborg, Denmark., Sciarrafia E; Department of Cardiology, Institution of Medical Science, Uppsala University, Uppsala, Sweden., Taborsky M; Department of Internal Medicine I-Cardiology, Palacký University Olomouc, Olomouc, Czech Republic., Tilz RR; University Heart Center Lübeck, Medical Clinic II (Cardiology/Angiology/Intensive Care Medicine), University Hospital Schleswig-Holstein, Ratzeburger Allee 160, 23538 Lübeck, Germany., Pieragnoli P; Unità di Aritmologia, Dipartimento Cardiotoracovascolare, University of Florence, Florence, Italy., Przybylski A; Head of the Department of Cardiology, KSW 2, Rzeszów, Poland.; Faculty of Medicine, University of Rzeszów, Rzeszów, Poland., Dagres N; Department of Electrophysiology, University Leipzig - Heart Center, 04289 Leipzig, Germany.
Jazyk:	angličtina
Zdroj:	Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology [Europace] 2018 Feb 01; Vol. 20 (2), pp. 386-391.
DOI:	10.1093/europace/eux365
Abstrakt:	The purpose of this patient survey was to analyse the knowledge, experiences, and attitudes regarding cardiac implantable electronic devices (CIED) in patients with pacemakers, implantable cardioverter-defibrillators (ICDs), or cardiac resynchronization devices. Of the 1644 patients with CIEDs from seven European countries, 88% were over 50 years of age. Most patients (90%) knew what device they were implanted with and felt sufficiently informed about the indications for therapy. As many as 42% of patients needed additional information on the battery replacement and limitations in physical activity. The self-reported incidence of complications was 9%, and among these, a quarter of the respondents felt insufficiently informed about the possibility of complications and their management. The majority of patients (83%) were followed by face-to-face visits, which was the most commonly preferred follow-up strategy by the patients. Nearly 75% of the patients reported improved quality of life after device implantation, but about 40% had worries about their device. Less than 20% had discussed with their physician or thought about device handling in the end-of-life circumstances or end-stage disease. Notably, almost 20% of the ICD patients did not wish to answer the question regarding what they wanted to be done with their ICD in case of end-stage disease, indicating the challenges in approaching these issues. (Published on behalf of the European Society of Cardiology. All rights reserved. © The Author(s) 2017. For permissions, please email: journals.permissions@oup.com.)
Databáze:	MEDLINE
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