Core information set for informed consent to surgery for oral or oropharyngeal cancer: A mixed-methods study.

Autor: Main BG; School of Social and Community Medicine, University of Bristol, Bristol, UK.; University Hospitals Bristol NHS Foundation Trust, Bristol, UK., McNair AGK; School of Social and Community Medicine, University of Bristol, Bristol, UK., Haworth S; School of Social and Community Medicine, University of Bristol, Bristol, UK.; School of Oral and Dental Sciences, University of Bristol, Bristol, UK., Rooshenas L; School of Social and Community Medicine, University of Bristol, Bristol, UK., Hughes CW; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.; School of Oral and Dental Sciences, University of Bristol, Bristol, UK., Tierney P; University Hospitals Bristol NHS Foundation Trust, Bristol, UK., Donovan JL; School of Social and Community Medicine, University of Bristol, Bristol, UK., Thomas SJ; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.; School of Oral and Dental Sciences, University of Bristol, Bristol, UK., Blazeby JM; School of Social and Community Medicine, University of Bristol, Bristol, UK.; University Hospitals Bristol NHS Foundation Trust, Bristol, UK.
Jazyk: angličtina
Zdroj: Clinical otolaryngology : official journal of ENT-UK ; official journal of Netherlands Society for Oto-Rhino-Laryngology & Cervico-Facial Surgery [Clin Otolaryngol] 2018 Apr; Vol. 43 (2), pp. 624-631. Date of Electronic Publication: 2017 Dec 21.
DOI: 10.1111/coa.13037
Abstrakt: Objectives: To develop a core information set for informed consent to surgery for oral/oropharyngeal surgery. A core information set is baseline information rated important by patients and surgeons and is intended to improve patients' understanding of the intended procedure.
Design: A mixed-methods study. Systematic reviews of scientific and written healthcare literature, qualitative interviews and observations, Delphi surveys, and group consensus meetings identified information domains of importance for consent.
Setting: A regional head and neck clinic in the United Kingdom. Questionnaire participants were recruited from around the UK.
Participants: Patients about to undergo, or who had previously undergone, surgery for oral/oropharyngeal cancer. Healthcare professionals involved in the management of head and neck cancer.
Main Outcome Measures: The main outcome was a core information set.
Results: Systematic reviews, interviews and consultation observations yielded 887 pieces of information that were categorised into 87 information domains. Survey response rates were 67% (n = 50) and 71% (n = 52) for patient and healthcare professional groups in round one. More than 90% responded in each group in the second round. Healthcare professionals were more likely to rate information about short-term or peri-operative events as important while patients rated longer term issues about survival and quality of life. The consensus-building process resulted in an agreed core information set of 13 domains plus two procedure-specific domains about tracheostomy and free-flap surgery.
Conclusion: This study produced a core information set for surgeons and patients to discuss before surgery for oral/oropharyngeal cancer. Future work will optimise ways to integrate core information into routine consultations.
(© 2017 John Wiley & Sons Ltd.)
Databáze: MEDLINE
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