Knowledge gaps in patients with COPD and their proxies.

Autor: Nakken N; Department of Research & Education, CIRO, Horn, the Netherlands. nienkenakken@ciro-horn.nl., Janssen DJA; Department of Research & Education, CIRO, Horn, the Netherlands.; Centre of Expertise for Palliative Care, Maastricht University Medical Centre+ (MUMC+), Maastricht, the Netherlands., van den Bogaart EHA; Department of Research & Education, CIRO, Horn, the Netherlands., Muris JWM; Department of Family Medicine, CAPHRI School of Public Health and Primary Care, Maastricht University, Maastricht, The Netherlands., Vercoulen JH; Department of Medical Psychology and Department of Pulmonary Diseases, Radboud University Nijmegen Medical Centre, Nijmegen, the Netherlands., Custers FL; Department of Respiratory Medicine, Zuyderland, Heerlen, the Netherlands., Bootsma GP; Department of Respiratory Medicine, Zuyderland, Heerlen, the Netherlands., Gronenschild MHM; Department of Respiratory Medicine, Zuyderland, Heerlen, the Netherlands., Wouters EFM; Department of Research & Education, CIRO, Horn, the Netherlands.; Department of Respiratory Medicine, Maastricht University Medical Centre+ (MUMC+), Maastricht, the Netherlands., Spruit MA; Department of Research & Education, CIRO, Horn, the Netherlands.; Department of Respiratory Medicine, NUTRIM School of Nutrition and Translational Research in Metabolism, Maastricht University Medical Centre+ (MUMC+), Maastricht, The Netherlands.
Jazyk: angličtina
Zdroj: BMC pulmonary medicine [BMC Pulm Med] 2017 Oct 30; Vol. 17 (1), pp. 136. Date of Electronic Publication: 2017 Oct 30.
DOI: 10.1186/s12890-017-0481-8
Abstrakt: Background: Although proxies of patients with chronic obstructive pulmonary disease (COPD) need health-related knowledge to support patients in managing their disease, their current level of knowledge remains unknown. We aimed to compare health-related knowledge (generic and COPD-related knowledge) between patients with COPD and their resident proxies.
Methods: In this cross-sectional study, we included stable patients with moderate to very severe COPD and their resident proxies (n = 194 couples). Thirty-four statements about generic health and COPD-related topics were assessed in patients and proxies separately. Statements could be answered by 'true', 'false', or 'do not know'. This study is approved by the Medical Research Ethics Committees United (MEC-U), the Netherlands (NL42721.060.12/M12-1280).
Results: Patients answered on average 17% of the statements incorrect, and 19% with 'do not know'. The same figure (19%) for the incorrect and unknown statements was shown by proxies. Patients who attended pulmonary rehabilitation previously answered more statements correct (about three) compared to patients who did not attend pulmonary rehabilitation. More correct answers were reported by: younger patients, patients with a higher level of education, patients who previously participated in pulmonary rehabilitation, patients with better cognitive functioning, and patients with a COPD diagnosis longer ago.
Conclusions: Proxies of patients with COPD as well as patients themselves answer about two third of 34 knowledge statements about COPD correct. So, both patients and proxies seem to have an incomplete knowledge about COPD and general health. Therefore, education about general health and COPD should be offered to all subgroups of patients with COPD and their proxies.
Trial Registration: This study is registered in the Dutch Trial Register ( NTR3941 ). Registered 19 April 2013.
Databáze: MEDLINE
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