Validation and Quality Assessment of the Kilimanjaro Cancer Registry.

Autor:	Zullig LL; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Schroeder K; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Nyindo P; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Namwai T; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Silayo E; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Msomba A; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Munishi MO; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Karia F; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Muiruri C; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Bartlett J; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Maro V; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania., Zafar SY; Durham Veterans Affairs Center for Research in Primary Care; , , , , and , Duke University, Durham, NC; , Bugando Medical Centre, Mwanza; and , , , , , , , , and , Kilimanjaro Christian Medical Centre, Moshi, Tanzania.
Jazyk:	angličtina
Zdroj:	Journal of global oncology [J Glob Oncol] 2016 Apr 27; Vol. 2 (6), pp. 381-386. Date of Electronic Publication: 2016 Apr 27 (Print Publication: 2016).
DOI:	10.1200/JGO.2015.002873
Abstrakt:	Purpose: Global cancer burden has increasingly shifted to low- and middle-income countries and is particularly pronounced in Africa. There remains a lack of comprehensive cancer information as a result of limited cancer registry development. In Moshi, Tanzania, a regional cancer registry exists at Kilimanjaro Christian Medical Center. Data quality is unknown. Our objective was to evaluate the completeness and quality of the Kilimanjaro Cancer Registry (KCR). Methods: In October 2015, we conducted a retrospective review of KCR by validating the internal consistency of registry records with medical and pathology records. We randomly sampled approximately 100 total registry cases. Four reviewers not associated with the KCR manually collected data elements from medical records and compared them with KCR data. Results: All 100 reviewed registry cases had complete cancer site and morphology included in the registry. Six had a recorded stage. For the majority (n = 92), the basis of diagnosis was pathology. Pathology reports were found in the medical record for 40% of patients; for the remainder, these were stored separately in the pathology department. Of sampled registry cases, the KCR and medical records were 98% and 94% concordant for primary cancer site and morphology, respectively. For 28%, recorded diagnosis dates were within 14 days of what was found in the medical record, and for 32%, they were within 30 days. Conclusion: The KCR has a high level of concordance for classification and coding when data are retrieved for validation. This parameter is one of the most important for measuring data quality in a regional cancer registry. Competing Interests: Authors’ disclosures of potential conflicts of interest and contributions are found at the end of this article.Validation and Quality Assessment of the Kilimanjaro Cancer RegistryThe following represents disclosure information provided by authors of this manuscript. All relationships are considered compensated. Relationships are self-held unless noted. I = Immediate Family Member, Inst = My Institution. Relationships may not relate to the subject matter of this manuscript. For more information about ASCO's conflict of interest policy, please refer to www.asco.org/rwc or ascopubs.org/jco/site/ifc.Leah L. ZulligNo relationship to discloseKristin SchroederNo relationship to disclosePilli NyindoNo relationship to discloseTheresia NamwaiNo relationship to discloseElvis SilayoNo relationship to discloseAngelah MsombaNo relationship to discloseMichael Oresto MunishiNo relationship to discloseFrancis KariaNo relationship to discloseCharles MuiruriNo relationship to discloseJohn BartlettNo relationship to discloseVenance MaroNo relationship to discloseS. Yousuf ZafarEmployment: Novartis (I) Stock or Other Ownership: Novartis (I) Consulting or Advisory Role: Genentech Travel, Accommodations, Expenses: Genentech
Databáze:	MEDLINE
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