The impact of language barriers and immigration status on the care experience for Spanish-speaking caregivers of patients with pediatric cancer.

Autor: Zamora ER; Utah Department of Health, Salt Lake City, Utah. ezamora@utah.gov., Kaul S; Department of Preventive Medicine and Community Health, University of Texas Medical Branch, Galveston, Texas., Kirchhoff AC; Cancer Control and Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah.; Division of Pediatric Hematology/Oncology, University of Utah School of Medicine, Salt Lake City, Utah., Gwilliam V; Primary Children's Hospital, Salt Lake City, Utah., Jimenez OA; Colorado School of Public Health, Aurora, Colorado., Morreall DK; Cancer Control and Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah., Montenegro RE; Seattle Children's Hospital, University of Washington, Seattle, Washington., Kinney AY; University of New Mexico Comprehensive Cancer Center, Albuquerque, New Mexico.; Department of Internal Medicine, University of New Mexico, Albuquerque, New Mexico., Fluchel MN; Cancer Control and Population Sciences, Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah.; Division of Pediatric Hematology/Oncology, University of Utah School of Medicine, Salt Lake City, Utah.
Jazyk: angličtina
Zdroj: Pediatric blood & cancer [Pediatr Blood Cancer] 2016 Dec; Vol. 63 (12), pp. 2173-2180. Date of Electronic Publication: 2016 Jul 21.
DOI: 10.1002/pbc.26150
Abstrakt: Background: An increasing proportion of pediatric cancer patients in the United States are Latino and many have Spanish-speaking immigrant parents with limited English proficiency (LEP). Little is known about how language or undocumented immigration status impacts their care experience.
Procedure: A cross-sectional survey was administered to English (N = 310) and Spanish-speaking LEP (N = 56) caregivers of pediatric cancer patients. To assess differences in healthcare experiences between the language groups, t-tests and chi-square statistics were used. Multivariable logistic regression evaluated associations between primary language and knowledge of clinical trial status.
Results: Spanish-speaking caregivers were more likely to report higher rates of quitting or changing jobs as a direct result of their child's cancer, and their children were more likely to experience a delay in education. Although Spanish-speaking caregivers reported higher satisfaction with care, 32% reported feeling that their child would have received better care if English was their primary language. Spanish-speaking caregivers were more likely to incorrectly identify whether their child was on a clinical trial compared with English-speaking caregivers. The majority of Spanish-speaking caregivers reported at least one undocumented caregiver in the household and 11% of them avoided or delayed medical care for their child due to concerns over their undocumented immigration status.
Conclusions: Language barriers and undocumented immigration status may negatively impact the quality of informed decision-making and the care experience for Spanish-speaking LEP caregivers of pediatric cancer patients. These families may benefit from culturally appropriate Spanish language resources to improve communication and open a dialogue regarding undocumented immigration status.
(© 2016 Wiley Periodicals, Inc.)
Databáze: MEDLINE
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