Consideration of Insulin Pumps or Continuous Glucose Monitors by Adolescents With Type 1 Diabetes and Their Parents: Stakeholder Engagement in the Design of Web-Based Decision Aids.

Autor:	Wysocki T; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Hirschfeld F; Nemours Center for Children's Health Media, Wilmington, DE (Ms Hirschfield, Dr Izenberg, Dr Dowshen, Ms Shinseki, Dr Lyness), Miller L; eCity Interactive, Inc, Philadelphia, PA (Mr Miller), Izenberg N; Nemours Center for Children's Health Media, Wilmington, DE (Ms Hirschfield, Dr Izenberg, Dr Dowshen, Ms Shinseki, Dr Lyness), Dowshen SA; Nemours Center for Children's Health Media, Wilmington, DE (Ms Hirschfield, Dr Izenberg, Dr Dowshen, Ms Shinseki, Dr Lyness), Taylor A; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Milkes A; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Shinseki MT; Nemours Center for Children's Health Media, Wilmington, DE (Ms Hirschfield, Dr Izenberg, Dr Dowshen, Ms Shinseki, Dr Lyness), Bejarano C; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Kozikowski C; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Kowal K; Nemours-Jefferson Pediatrics, Philadelphia, PA (Ms Kowal, Dr Ross, Ms Rafalko), Starr-Ashton P; Member of Family Advisory Council, Drexel Hill, PA (Ms Starr-Ashton), Ross JL; Nemours-Jefferson Pediatrics, Philadelphia, PA (Ms Kowal, Dr Ross, Ms Rafalko), Kummer M; Nemours Children's Specialty Care, Pensacola, FL (Dr Kummer), Carakushansky M; Nemours Children's Hospital, Orlando, FL (Dr Carakushansky, Dr Pierce), Lyness D; Nemours Center for Children's Health Media, Wilmington, DE (Ms Hirschfield, Dr Izenberg, Dr Dowshen, Ms Shinseki, Dr Lyness), Brinkman W; Cincinnati Children's Hospital and Medical Center, Cincinnati, OH (Dr Brinkman), Pierce J; Nemours Children's Hospital, Orlando, FL (Dr Carakushansky, Dr Pierce), Fiks A; Children's Hospital of Philadelphia and University of Pennsylvania, Philadelphia, PA (Dr Fiks), Christofferson J; Center for Health Care Delivery Science, Nemours Children's Health System, Jacksonville, FL, and Wilmington, DE (Dr Wysocki, Ms Taylor, Ms Milkes, Ms Bejarano, Ms Kozikowski, Ms Christofferson), Rafalko J; Nemours-Jefferson Pediatrics, Philadelphia, PA (Ms Kowal, Dr Ross, Ms Rafalko), Lawson ML; Children's Hospital of Eastern Ontario, Ottawa, Ontario, CA (Dr Lawson)
Jazyk:	angličtina
Zdroj:	The Diabetes educator [Diabetes Educ] 2016 Aug; Vol. 42 (4), pp. 395-407. Date of Electronic Publication: 2016 May 04.
DOI:	10.1177/0145721716647492
Abstrakt:	Purpose: This article describes the stakeholder-driven design, development, and testing of web-based, multimedia decision aids for youth with type 1 diabetes who are considering the insulin pump or continuous glucose monitoring and their parents. This is the initial phase of work designed to develop and evaluate the efficacy of these decision aids in promoting improved decision-making engagement with use of a selected device. Methods: Qualitative interviews of 36 parents and adolescents who had previously faced these decisions and 12 health care providers defined the content, format and structure of the decision aids. Experts in children's health media helped the research team to plan, create, and refine multimedia content and its presentation. A web development firm helped organize the content into a user-friendly interface and enabled tracking of decision aid utilization. Throughout, members of the research team, adolescents, parents, and 3 expert consultants offered perspectives about the website content, structure, and function until the design was complete. Results: With the decision aid websites completed, the next phase of the project is a randomized controlled trial of usual clinical practice alone or augmented by use of the decision aid websites. Conclusions: Stakeholder-driven development of multimedia, web-based decision aids requires meticulous attention to detail but can yield exceptional resources for adolescents and parents contemplating major changes to their diabetes regimens. (© 2016 The Author(s).)
Databáze:	MEDLINE
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