Common variables in European pancreatic cancer registries: The introduction of the EURECCA pancreatic cancer project.

Autor: de Leede EM; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands., Sibinga Mulder BG; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands., Bastiaannet E; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands., Poston GJ; Department of Surgery, University Hospital Aintree, Liverpool, United Kingdom., Sahora K; Department of Surgery and Comprehensive Cancer Centre, Medical University of Vienna/ABCSG Pancreatic Cancer Registry, Austria., Van Eycken E; Belgian Cancer Registry, Brussels, Belgium., Valerianova Z; Bulgarian National Cancer Registry/National Oncological Hospital, Sofia, Bulgaria., Mortensen MB; Department of Surgery, Odense University Hospital/Danish Pancreas Cancer Group, Denmark., Dralle H; Department of Surgery, University of Halle-Wittenberg/Pancreatic Cancer Register, Halle, Germany., Primic-Žakelj M; Epidemiology and Cancer Registry/Institute of Oncology, Ljubljana, Slovenia., Borràs JM; Department of Clinical Sciences, University of Barcelona, Barcelona, Spain., Gasslander T; Department of Surgery, Linköping University/Swedish Registry for Pancreatic Tumors, Sweden., Ryzhov A; National Cancer Registry of Ukraine/National Institute of Cancer, Kiev, Ukraine., Lemmens VE; Department of Research, Netherlands Cancer Registry/Comprehensive Cancer Centre The Netherlands (IKNL), Eindhoven, The Netherlands., Mieog JS; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands., Boelens PG; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands., van de Velde CJ; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands. Electronic address: c.j.h.van_de_velde@lumc.nl., Bonsing BA; Department of Surgery, Leiden University Medical Centre, Leiden, The Netherlands.
Jazyk: angličtina
Zdroj: European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology [Eur J Surg Oncol] 2016 Sep; Vol. 42 (9), pp. 1414-9. Date of Electronic Publication: 2016 Mar 28.
DOI: 10.1016/j.ejso.2016.03.011
Abstrakt: Background: Quality assurance of cancer care is of utmost importance to detect and avoid under and over treatment. Most cancer data are collected by different procedures in different countries, and are poorly comparable at an international level. EURECCA, acronym for European Registration of Cancer Care, is a platform aiming to harmonize cancer data collection and improve cancer care by feedback. After the prior launch of the projects on colorectal, breast and upper GI cancer, EURECCA's newest project is collecting data on pancreatic cancer in several European countries.
Methods: National cancer registries, as well as specific pancreatic cancer audits/registries, were invited to participate in EURECCA Pancreas. Participating countries were requested to share an overview of their collected data items. Of the received datasets, a shared items list was made which creates insight in similarities between different national registries and will enable data comparison on a larger scale. Additionally, first data was requested from the participating countries.
Results: Over 24 countries have been approached and 11 confirmed participation: Austria, Belgium, Bulgaria, Denmark, Germany, The Netherlands, Slovenia, Spain, Sweden, Ukraine and United Kingdom. The number of collected data items varied between 16 and 285. This led to a shared items list of 25 variables divided into five categories: patient characteristics, preoperative diagnostics, treatment, staging and survival. Eight countries shared their first data.
Conclusions: A list of 25 shared items on pancreatic cancer coming from eleven participating registries was created, providing a basis for future prospective data collection in pancreatic cancer treatment internationally.
(Copyright © 2016 Elsevier Ltd. All rights reserved.)
Databáze: MEDLINE
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