Mixed-Methods Pilot Study: Disaster Preparedness of Families With Children Followed in an Intestinal Rehabilitation Clinic.

Autor: Goodhue CJ; Division of Pediatric Surgery, Children's Hospital Los Angeles, Los Angeles, California cgoodhue@chla.usc.edu., Demeter NE; Division of Pediatric Surgery, Children's Hospital Los Angeles, Los Angeles, California., Burke RV; Division of Pediatric Surgery, Children's Hospital Los Angeles, Los Angeles, California Keck School of Medicine, University of Southern California, California., Toor KT; Division of Gastroenterology, Hepatology and Nutrition, Children's Hospital Los Angeles, Los Angeles, California., Upperman JS; Division of Pediatric Surgery, Children's Hospital Los Angeles, Los Angeles, California Keck School of Medicine, University of Southern California, California., Merritt RJ; Keck School of Medicine, University of Southern California, California Division of Gastroenterology, Hepatology and Nutrition, Children's Hospital Los Angeles, Los Angeles, California.
Jazyk: angličtina
Zdroj: Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition [Nutr Clin Pract] 2016 Apr; Vol. 31 (2), pp. 257-65. Date of Electronic Publication: 2015 Oct 08.
DOI: 10.1177/0884533615605828
Abstrakt: Background: Children with special healthcare needs are a vulnerable population in disasters. Special-needs families tend to be less prepared for a disaster than the general public. The purpose of this pilot project was to examine the disaster preparedness levels of families in an intestinal rehabilitation (IR) clinic.
Materials and Methods: We administered an anonymous survey to a convenience sample of IR clinic families and conducted 2 focus groups. Descriptive analyses were used for survey data; Atlas.ti was used to analyze focus group data.
Results: Survey findings revealed that 69% of families lacked an emergency supply kit, and 93% did not have a clinician-completed emergency information form. On a scale of 1-10, the mean confidence in their family's disaster preparations was 4.9. The overarching theme from focus group discussions was challenges and/or barriers to disaster preparedness.
Conclusion: IR clinic families are generally unprepared for a disaster. These findings are highly relevant to our goal of developing a disaster survival toolkit for the IR families. Toolkits are being distributed in the IR clinic.
(© 2015 American Society for Parenteral and Enteral Nutrition.)
Databáze: MEDLINE
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