Do consumer voices in health-care citizens' juries matter?

Autor: Krinks R; School of Human Services and Social Work, Menzies Health Institute Qld, Griffith University, Logan, Qld, Australia. r.krinks@griffith.edu.au., Kendall E; Centre of National Research on Disability and Rehabilitation, Menzies Health Institute Qld, Griffith University, Logan, Qld, Australia., Whitty JA; School of Pharmacy, Faculty of Health and Behavioural Sciences, The University of Queensland, Brisbane, Qld, Australia.; Centre for Applied Health Economics, School of Medicine, Griffith University, Brisbane, Qld, Australia., Scuffham PA; Director of the Centre for Applied Health Economics and Director of the Population and Social Health Research Program, Menzies Health Institute Qld, Griffith University, Brisbane, Qld, Australia.
Jazyk: angličtina
Zdroj: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2016 Oct; Vol. 19 (5), pp. 1015-22. Date of Electronic Publication: 2015 Sep 28.
DOI: 10.1111/hex.12397
Abstrakt: Background: There is widespread agreement that the public should be engaged in health-care decision making. One method of engagement that is gaining prominence is the citizens' jury, which places citizens at the centre of the deliberative process. However, little is known about how the jury process works in a health-care context. There is even less clarity about how consumer perspectives are heard within citizens' juries and with what consequences.
Objectives: This paper focuses on what is known about the role of consumer voices within health-care citizens' juries, how these voices are heard by jurors and whether and in what ways the inclusion or exclusion of such voices may matter.
Results: Consumer voices are not always included in health-care citizens' juries. There is a dearth of research on the conditions under which consumer voices emerge (or not), from which sources and why. As a result, little is known about what stories are voiced or silenced, and how such stories are heard by jurors, with what consequences for jurors, deliberation, decision-makers, policy and practice.
Discussion and Conclusion: The potential role of consumer voices in influencing deliberations and recommendations of citizens' juries requires greater attention. Much needed knowledge about the nuances of deliberative processes will contribute to an assessment of the usefulness of citizens' juries as a public engagement mechanism.
(© 2015 The Authors. Health Expectations. Published by John Wiley & Sons Ltd.)
Databáze: MEDLINE
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