Evaluation of Physician and Nurse Dyad Training Procedures to Deliver a Palliative and End-of-Life Communication Intervention to Parents of Children with a Brain Tumor.

Autor: Hendricks-Ferguson VL; Saint Louis University School of Nursing, St. Louis, MO, USA hendrivl@slu.edu., Kane JR; Texas A&M College of Medicine, Temple, TX, USA., Pradhan KR; Indiana University School of Medicine, Indianapolis, IN, USA., Shih CS; Indiana University School of Medicine, Indianapolis, IN, USA., Gauvain KM; Washington University School of Medicine, St Louis, MO, USA., Baker JN; St Jude Children's Research Hospital, Memphis, TN, USA., Haase JE; Indiana University School of Nursing, Indianapolis, IN, USA.
Jazyk: angličtina
Zdroj: Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses [J Pediatr Oncol Nurs] 2015 Sep-Oct; Vol. 32 (5), pp. 337-47. Date of Electronic Publication: 2015 Jan 26.
DOI: 10.1177/1043454214563410
Abstrakt: When a child's prognosis is poor, physicians and nurses (MDs/RNs) often struggle with initiating discussions about palliative and end-of-life care (PC/EOL) early in the course of illness trajectory. We describe evaluation of training procedures used to prepare MD/RN dyads to deliver an intervention entitled: Communication Plan: Early Through End of Life (COMPLETE) intervention. Our training was delivered to 5 pediatric neuro-oncologists and 8 pediatric nurses by a team of expert consultants (i.e., in medical ethics, communication, and PC/EOL) and parent advisors. Although half of the group received training in a 1-day program and half in a 2-day program, content for all participants included 4 modules: family assessment, goal-directed treatment planning, anticipatory guidance, and staff communication and follow-up. Evaluations included dichotomous ratings and qualitative comments on content, reflection, and skills practice for each module. Positive aspects of our training included parent advisers' insights, emphasis on hope and non-abandonment messages, written materials to facilitate PC/EOL communication, and an MD/RN dyad approach. Lessons learned and challenges related to our training procedures will be described. Overall, the MDs and RNs reported that our PC/EOL communication-training procedures were helpful and useful. Future investigators should carefully plan training procedures for PC/EOL communication interventions.
(© 2015 by Association of Pediatric Hematology/Oncology Nurses.)
Databáze: MEDLINE