He Looks Normal But … Challenges of Family Caregivers of Veterans Diagnosed with a Traumatic Brain Injury.

Autor: Saban KL; Center of Innovation for Complex Chronic Healthcare, Edward Hines Jr. VA Hospital, Hines, IL, USA.; Marcella Niehoff School of Nursing, Loyola University Chicago, Maywood, IL, USA., Hogan NS; Marcella Niehoff School of Nursing, Loyola University Chicago, Maywood, IL, USA., Hogan TP; The Center for Health Quality, Outcomes and Economic Research, Edith Nourse Rogers Memorial Veterans Hospital, Bedford, MA, USA.; University of Massachusetts Medical School, Worcester, MA, USA., Pape TL; Center of Innovation for Complex Chronic Healthcare, Edward Hines Jr. VA Hospital, Hines, IL, USA.; Department of Physical Medicine and Rehabilitation, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Jazyk: angličtina
Zdroj: Rehabilitation nursing : the official journal of the Association of Rehabilitation Nurses [Rehabil Nurs] 2015 Sep-Oct; Vol. 40 (5), pp. 277-85. Date of Electronic Publication: 2014 Nov 25.
DOI: 10.1002/rnj.182
Abstrakt: Purpose: To describe the experience of family caregivers providing care to veterans with traumatic brain injury (TBI).
Design/methods: Using a qualitative design, interviews were conducted with a purposeful sample of women caregivers. Data were analyzed using content analysis procedures.
Findings: Findings resulted in the key concept phrased by participants as "He looks normal but." This phrase conceptualizes the participants' description of their experience caring for a brain injured veteran who could appear normal to others but the caregiver's description revealed substantial cognitive, social, and emotional deficits. Concepts include (a) Becoming aware of his disabilities, (b) Observing his troubling symptoms, (c) Dealing with his memory loss, (d) Being fearful of his anger, (e) Sensing his loneliness, (f) Acknowledging the effects on the children, and (g) Managing the best I can.
Conclusions/clinical Relevance: A better understanding of the needs of caregivers of veterans with TBI may allow clinicians to better support caregivers.
(© 2014 Association of Rehabilitation Nurses.)
Databáze: MEDLINE
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