[Children and adolescents on hemodialysis: attributes associated with quality of life].

Autor:	Abreu IS; Midwest State University, Guarapuava, PR, Brazil., Kourrouski MF; Nursing School of Ribeirão Preto, University of São Paulo, Guarapuava, PR, Brazil., dos Santos DM; Nursing School of Ribeirão Preto, University of São Paulo, Guarapuava, PR, Brazil., Bullinger M; Institute and Polyclinic of Psychology Medicine, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany., Nascimento LC; Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil., de Lima RA; Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil., dos Santos CB; Nursing School of Ribeirão Preto, Department of Maternal-Infant and Public Health, University of São Paulo, Ribeirão Preto, SP, Brazil.
Jazyk:	portugalština
Zdroj:	Revista da Escola de Enfermagem da U S P [Rev Esc Enferm USP] 2014 Aug; Vol. 48 (4), pp. 601-9.
Abstrakt:	Objective: To identify quality of life impacting attributes related to health of children and adolescents with chronic renal failure,on hemodialysis, as initial step to build the specific module DISABKIDS®. Method: An Exploratory descriptive study, with qualitative approach, with data collected between August of 2011 to March of 2013, through focus group analysis, with 42 participants between 8 and 18 years, their parents and caregivers. The data analysis was conducted following the thematic content, using the program Qualitative Data Analysis Software. Results: Seven themes were identified:water and food restrictions, limitations imposed by the treatment, time dedicated to treatment, change in body image related to the vascular access and growth,stigma, self-care and hope of kidney transplantation. Conclusion: Relevant aspects to the participants' experience regarding the disease and the treatment were apprehended, trying to understand how this process is associated to quality of life.
Databáze:	MEDLINE
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