The role of quality of care and attitude towards disability in the relationship between severity of disability and quality of life: findings from a cross-sectional survey among people with physical disability in China.

Autor: Zheng QL, Tian Q, Hao C; Department of Medical Statistics and Epidemiology & Center for Health Informatics Research & Guangdong Key Laboratory of Medicine, Laboratory of Health Informatics, School of Public Health, Sun Yat-sen University, Guangzhou Guangdong, P,R, China. chao@hsph.harvard.edu., Gu J, Lucas-Carrasco R, Tao JT, Liang ZY, Chen XL, Fang JQ, Ruan JH, Ai QX, Hao YT
Jazyk: angličtina
Zdroj: Health and quality of life outcomes [Health Qual Life Outcomes] 2014 Feb 23; Vol. 12, pp. 25. Date of Electronic Publication: 2014 Feb 23.
DOI: 10.1186/1477-7525-12-25
Abstrakt: Background: People with physical disability (PWPD) is the largest subgroup of people with disability (PWD) in China, but few studies have been conducted among this vulnerable population. The objective of this study was to investigate the level of quality of life (QoL), self-perceived quality of care and support (QOCS), severity of disability and personal attitude towards disability among people with physical disability in China, as well as to identify how QoL can be affected by severity of disability through QOCS and personal attitude towards disability among PWPD.
Methods: A cross-sectional study was conducted among 1,853 PWPD in Guangzhou, China. Data were collected on participants' QoL, QOCS, personal attitude towards disability and severity of disability. Structural equation modeling was used to examine the effects of the other variables on QoL.
Results: Even with a mild disability (mean score:1.72), relatively low levels of QoL (mean score: 2.65- 3.22) and QOCS (mean score: 2.95 to 3.28), as well as unfavorable personal attitude towards disability (mean score: 2.75 to 3.36) were identified among PWPD. According to SEM, we found that the influence of severity of physical disability on QoL is not only exerted directly, but is also indirectly through QOCS and their personal attitudes towards disability, with QOCS playing a more important mediating role than PWPD's attitudes towards their own disability.
Conclusions: Unfavorable health status was identified among PWPD in China. Focusing on improvement of assistance and care services has the potential to substantially improve PWPD's QoL. Further research should focus on understanding the needs and their current state of health care of PWPD in China thus being able to develop better interventions for them.
Databáze: MEDLINE
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