| Autor: |
Davies B; School of Nursing, University of Victoria and Family Health Care Nursing, University of California San Francisco., Baird J, Gudmundsdottir M |
| Jazyk: |
angličtina |
| Zdroj: |
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association [J Hosp Palliat Nurs] 2013 May 01; Vol. 15 (3). |
| DOI: |
10.1097/NJH.0b013e3182765a2a |
| Abstrakt: |
This paper describes the key behaviors of "excellent" pediatric healthcare providers - a term used by fathers of children with complex, life-threatening illness to describe providers who consistently and effectively engage in family-centered care for children and their families. Using interview data from a multi-site grounded theory study of 60 fathers with a deceased child, five behaviors were identified: getting to know the family as individuals, talking about non-healthcare related topics, connecting in a human-human relationship, including parents as team members, and applying specialized knowledge to help the family. These behaviors are consistent with the goals of family-centered care, but they are inconsistently practiced, resulting in less-than-optimal care for children and their families during periods of crisis and vulnerability. A renewed focus on relationship building and interactions with families is needed, as well as a re-evaluation of the training of pediatric healthcare providers. |
| Databáze: |
MEDLINE |
| Externí odkaz: |
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