Health-related quality of life and congenital heart disease in Australia.

Autor: Eagleson KJ; Queensland Paediatric Cardiac Service, Mater Health Services, Brisbane, Queensland, Australia; School of Population Health, University of Queensland, Brisbane, Queensland, Australia., Justo RN, Ware RS, Johnson SG, Boyle FM
Jazyk: angličtina
Zdroj: Journal of paediatrics and child health [J Paediatr Child Health] 2013 Oct; Vol. 49 (10), pp. 856-64. Date of Electronic Publication: 2013 Jun 27.
DOI: 10.1111/jpc.12296
Abstrakt: Aim: To determine whether, in children with congenital heart disease (CHD), disease severity is associated with health-related quality of life (HRQOL) and impact on the family.
Methods: Cross-sectional, single-centre study comparing HRQOL outcomes of age and sex matched children with hypoplasia of the left ventricle (HLV) (n = 31) and tetralogy of Fallot (n = 29) was performed in Queensland, Australia. HRQOL was assessed using generic and disease-specific components of the Paediatric Quality of Life Inventory Measurement Model (PedsQL). Intra-diagnostic age group comparisons of HRQOL were examined. Impact of CHD on families and parental HRQOL was assessed using the PedsQL Family Impact Scale.
Results: Child and parent-proxy reporting indicate children with HLV have significantly lower overall HRQOL than children with tetralogy of Fallot across generic domains of HRQOL (P < 0.0001), with significantly lower scores in physical (P < 0.0001) and psychosocial (P < 0.0001) health domains. No significant difference in child reporting across domains of the Cardiac Module is evident. Parent-proxy reporting indicates significantly lower scores on the symptom scales for children with HLV (P < 0.001), with greater cognitive problems (P < 0.02) and perceived treatment anxiety (P < 0.01). No significant differences in HRQOL were identified between age groups. HLV has a greater overall family impact, with significantly lower parental HRQOL (P = 0.0001) and family functioning (P < 0.0001) summary scores.
Conclusions: The more severe condition of HLV is associated with poorer HRQOL in some domains and has greater impact on parental HRQOL and family functioning.
(© 2013 The Authors. Journal of Paediatrics and Child Health © 2013 Paediatrics and Child Health Division (Royal Australasian College of Physicians).)
Databáze: MEDLINE
Externí odkaz: